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is there a special way of doing this at home?

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  • waterflow
    replied
    My box isn't full.

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  • L. Thomas
    replied
    Originally posted by waterflow View Post
    I did the heparin/lido instill this morning and pain wise it isn t' the same as when the uro does it. Pain is better after he does it and it is some what worse after I did it. Getting sharp pains in the bladder too. I did the same way uro does it so does it take a while to do it pain free? I also cleaned the cath with peroxide. Then rinsed it well. also cleaned the "area" with it.

    I had a PM to send you but your mailbox is full. Click on User CP on the blue tool bar. Click on "List Messages" and delete some of the PM so you can receive more messages.

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  • ihurttoo
    replied
    Originally posted by L. Thomas View Post
    My urogyn says not to let the symptoms get ahead of you. I must say when I instill at the first symptoms I can take care of it that day and everything is back to "normal". If I wait until the symptoms get worse, it takes 3-4 days of instills to get back to normal.
    Same here. When I skip them b/c I am having a good day, (or even if I skip it b/c my pain meds are taking care of the problem), then I notice I flare a few days later. So, I try to do them about every other day to stay on top of things. Also, I do them before or after sex, since that generally causes me to flare. Or, if I am going to do something else that usually causes me to flare, (like exersize, or driving in a car for more than 30 min or so, etc.). But, everyone is different. Do you keep a pain diary? If not, that is a great way to find out what your personal triggers are for flares, and then do your instills before you do something that is unavoidable, but usually causes a flare.

    Hope this helps!

    Hugs,
    Amy

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  • L. Thomas
    replied
    My urogyn says not to let the symptoms get ahead of you. I must say when I instill at the first symptoms I can take care of it that day and everything is back to "normal". If I wait until the symptoms get worse, it takes 3-4 days of instills to get back to normal.

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  • klassdg
    replied
    Newbie at Home Instillation, Need Help!

    I am confused as to when I should do my first rescue home
    instillation, since my IC flare symptoms seem so different this year.
    I can't tell if this is IC or not.

    I noticed today that my urine flow/amount is very small, even though
    I have had 10 glasses of water today.

    I used a Lidocaine urojet to calm my Urethra, a muscle relaxer,
    some Pyridium, and Antihistimine Vistaril.

    In the past, I would literally be fine one day, and the next morning
    wake up with horrible Urethra pain like a fire was all the way up there
    and in the bladder. It was very intense - brought me to tears.

    I have just had 5 1/2 months of Pelvic Floor Therapy at Johns Hopkins,
    every week - still going. And this has seemed to changed my "symptoms".

    I know all of you pros on here have been doing these Instillations
    at home 2 to 3 times a week, but for me, I am scared since it has
    been a year since they taught me.

    And also, I don't know WHEN is the correct time to do it.
    Wait to see if I get worse, or nip it in the bud?

    Thanks for any help,
    Newbie at Rescue
    Diane

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  • L. Thomas
    replied
    Originally posted by waterflow
    I will let my Uro take care of calling the pharmacy for the lidocaine bottles. They really do not like me there. have argued with them before on things so I am the evil customer. Bad part they are the only pharmacy around who will fill orders like this. I have asked the other pharmacys to fill things for the heparin and they say go to this one. How much water do you add to the heparin? Think my liquid amount wouldn't fit in a syringe unless they have really big ones.

    I can get the urojet at the pharmacy. Just Uro doesn't want me to use one for saftey reasons. I thought it would be eaiser and there is more in one of those then the little plastic tube. The urojet also has a smoother tip which isn't so painful getting into the erurthra. It's funny when I watch him do the urojet. He can get it all set up with one hand.
    I would say he has had more than just a little practice. I do not add any water. It is just the receipe in my signature. I use a 30cc syringe. The receipe is 11cc so there is plenty of room in th syringe. I use a pediactric feeding tube as a catheter. It has a rounded tip. I know a lot of ICers use a low friction catheter. I self-cathed at the hospital for a surgery. The cath was 16fr and it did not look like it had the same tip that the ped. cath does.

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  • waterflow
    replied
    I will let my Uro take care of calling the pharmacy for the lidocaine bottles. They really do not like me there. have argued with them before on things so I am the evil customer. Bad part they are the only pharmacy around who will fill orders like this. I have asked the other pharmacys to fill things for the heparin and they say go to this one. How much water do you add to the heparin? Think my liquid amount wouldn't fit in a syringe unless they have really big ones.

    I can get the urojet at the pharmacy. Just Uro doesn't want me to use one for saftey reasons. I thought it would be eaiser and there is more in one of those then the little plastic tube. The urojet also has a smoother tip which isn't so painful getting into the erurthra. It's funny when I watch him do the urojet. He can get it all set up with one hand.

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  • catlover2
    replied
    I have been using the urojets at least twice a day for about six months now and I have never had one break. I wonder how hard your doctor is pushing on the end of the glass tube containing the lidocaine. It isn't hard to push the glass tube into the dispenser, you can use just one finger on the end of the tube to push it in. The tube also has to be screwed into the dispenser correctly. All you have to do is take the yellow caps off the glass tube and the dispenser, put the tube on top of the dispenser end with the needle, and turn the tube one and a half times. Do not turn the tube more than one and a half times because the lidocaine will shoot out towards your hand and not into your urethra. After you have the tube with the lidocaine screwed in correctly, just push the tube gently into the dispenser and the lidocaine will go into your urethra.
    If you are having a problem finding a pharmacy that has the urojets, go to your local Wal-Mart pharmacy and they can order them for you. There are 25 urojets in a box, and they must be ordered by the box.

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  • L. Thomas
    replied
    Originally posted by waterflow
    Does the liquid lidocaine work better inside the bladder then the gel? I've been using the gel for now. Uro wrote a script for the liquid but pharmacy will only order it by the case. Not sure if insurance will pay for it and if not how much it will cost to buy a case of 20 bottles. I don't see why they make things so hard. How many times do you use the heparin? It doesn't seem to last long helping with the irratation. Only a few hours but I use 40,000 cc and guess that is the highest amount usuable.
    Your pharmacy should fill the Rx anyway the MD write it. Maybe if you tell your MD the problem with ordering he could write the Rx so it would cover everything. I know my urogyn write the Rx usage "as needed."

    I have never used the gel but it makes sense to me that if the liquid is difused in the instillation that it would cover the bladder lining more completely.

    I use 10,000 units of heparine with each instillation.

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  • waterflow
    replied
    Does the liquid lidocaine work better inside the bladder then the gel? I've been using the gel for now. Uro wrote a script for the liquid but pharmacy will only order it by the case. Not sure if insurance will pay for it and if not how much it will cost to buy a case of 20 bottles. I don't see why they make things so hard. How many times do you use the heparin? It doesn't seem to last long helping with the irratation. Only a few hours but I use 40,000 cc and guess that is the highest amount usuable.

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  • L. Thomas
    replied
    Originally posted by waterflow
    This is how it has been done at doc's which is how I do it. All of it is mixed into a plastic jar (for them, for me a disposable cup). There is a plastic tube thing with a point on it that is attached to the cath. Then the mixture is poured into that. Normally it won't go through the cath because of the lidocaine put in the eurethra. They use the ball to push the mixture down the cath. I don't seem to get enough lido in the eurethra to plug the cath so it will slowly go down the cath by itself. Sorry if I didn't explain it right.
    The cath I use is a long one. I can hold it up to help with the gravity to pull it into the bladder too. I don't understand how you could get enough water mixture with everything in the syringe alone?
    I think I understand. I have always coumpounded the mixture by drawing the meds into a syringe with a needle. I drain my bladder with the catheter and then take the needle off and attach it to a catheter and instill the meds into the bladder. It's pretty simple. You way sound a little difficult to me.

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  • ihurttoo
    replied
    I was using the jelly. When I used that, it was little metal tubes that came with a cone applicator. (Though, I will agree, it didnt go up very far. It bascially just made the inital entry easier.) Now, I use injectable lidocaine (liquid). I use a syringe without a needle and shoot it up there. It seems to work on contact, whereas it took about 15 min for the jelly. I also use the injectable Lidocaine in my bladder, not the jelly.

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  • waterflow
    replied
    Amy, when you put the lido in your eurethra are you using the little plastic squeeze bottle or the urojet? I think it's called urojet? I can't seem to really get enough in there or far enough up in like the uro can with the jet thing but he said those things break easily (he even had one break while I was there) and would only give me the plastic bottle.

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  • waterflow
    replied
    This is how it has been done at doc's which is how I do it. All of it is mixed into a plastic jar (for them, for me a disposable cup). There is a plastic tube thing with a point on it that is attached to the cath. Then the mixture is poured into that. Normally it won't go through the cath because of the lidocaine put in the eurethra. They use the ball to push the mixture down the cath. I don't seem to get enough lido in the eurethra to plug the cath so it will slowly go down the cath by itself. Sorry if I didn't explain it right.
    The cath I use is a long one. I can hold it up to help with the gravity to pull it into the bladder too. I don't understand how you could get enough water mixture with everything in the syringe alone?

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  • ihurttoo
    replied
    Originally posted by L. Thomas
    I guess I'm not using the same procedure that you are. I use a syrnige and needle and pull the meds into the syringe. I insert the catheter into my bladder and drain it. Then I remove the needle from the syringe and I attach the ped catheter to the syringe and istill the mixture into the bladder. What is the "ball" you mention?
    Same here. I havent heard of the ball either. Can you describe it for us?

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