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How many times do you do it?

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  • How many times do you do it?

    I've been doing it every morning now and it seems to help so things don't feel quit so irrated. Exspecially in the eurethra and I don't have pain when I pee. I feel sort of stupid and guilty doing it every morning. Guilty because insurance pays for it and I don't know how expensive it is but I am only taking 2 davacet now so would it be better to take 3-4 darvacet and quit the heparin at home or do the heparin and take only 2 darvacet. It sure is hard trying to deal with everything and decide which is best.

  • #2
    Don't feel guilty! Trust me, the insurance companies are doing just fine, thank you very much! As long as the instills are helping you, don't cut back on them. There are probably people on this board who do more than one a day.

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    • #3
      Thanks, it helps hearing that. I have medicaid and they are having a big stink on the news here about how house taxes are going up due to all the people on medicaid. I don't want anyone to lose their house over me. I pay for all the tens supplies myself and some of the supplies for doing the heparin at home but I just can't afford it all. Just seems people who have medicaid are made out to be lazy and worthless.

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      • #4
        Originally posted by waterflow View Post
        I've been doing it every morning now and it seems to help so things don't feel quit so irrated. Exspecially in the eurethra and I don't have pain when I pee. I feel sort of stupid and guilty doing it every morning. Guilty because insurance pays for it and I don't know how expensive it is but I am only taking 2 davacet now so would it be better to take 3-4 darvacet and quit the heparin at home or do the heparin and take only 2 darvacet. It sure is hard trying to deal with everything and decide which is best.

        If you were diabetic would you be concerned that you were using too much insulin? What's the difference? They are both life-long diesases that can be regulated but neither have a cure.

        heparin, lidocane and sodium bicarbonate are all generic...can't get cheaper than that!
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

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        • #5
          Originally posted by L. Thomas View Post
          If you were diabetic would you be concerned that you were using too much insulin? What's the difference? They are both life-long diesases that can be regulated but neither have a cure.

          heparin, lidocane and sodium bicarbonate are all generic...can't get cheaper than that!
          I totally agree! You didnt ask for this disease, and you cant help having it. The only thing that IS in your control is treating it, and that is what you are suppossed to do. It would cost alot more for you to go to the ER b/c you are in excruciating pain, than it would for you to prevent it at home by doing the instills when you can. JMHO!

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          • #6
            Thanks Amy and L.Thomas. What you said is totally true. For some reason I don't think of this as an illness. Guess I need to think of it that way.

            Amy, what does JHMO stand for?

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            • #7
              Please dont EVER feel guilty about helping yourself feel better. As for the insurance companies, well trust me, they get paid plenty and then some. What you are using is like a drop in the bucket to them really. I know that I have a friend who is on a feeding tube, and the liquid food she uses are very expensive, but without it she would not be here. I think it is up to the insuance companies to pay for these things. It is not your fault you are sick. Never feel guilty about that. I also get times where I feel real gulity, but that is because I can no longer be that great energetic mom and wife I use to be. But I would never waste time feeling gulity for the insurance companies. They have plenty of money, dont worry.
              Jen

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