No announcement yet.

Doing Your Own Instills

  • Filter
  • Time
  • Show
Clear All
new posts

  • Doing Your Own Instills

    Hi there,
    I have not posted in quite a while as I have been trying to get the right treatments and meds for me. I have done my instills myself for over yr now!! I have maybe given myself 1 bladder infection if that. I have done the heparin and also the elmiron. Currently elmiron. I LOVE doing them myself as it does NOT hurt at all since I can breathe and release my sphinter muscle. I use enough numbing medicine (lidocaine) to be able to sleep thru the night!! I love it cause it is the ONLY time that I can sleep thru the night! without getting up to pee a gaszillion times!! So by the time I wake up, I have done my mini hydrodistention, thanks to all the numbing medicine I use !! I sleep in mine and it has increased the capacity of my bladder by several cc's over this yr. I have had a hydro for diagnosis and then another this yr, which makes my pain less and all my syptoms less!!! I still hurt, don't get me wrong. There are days I wake up and the pain is so intense that I feel like I am going to vomit.....................but I feel like I have come a long way from where I was. It was all because of my mother!! She has IC also and she taught me all that I know as she was diagnosed yrs before me. She was one of the first people to get to do self home instills in our area and she has come such alone way too!!! She was at one point doing instills up to 3 times a day!!!!
    She has been such a help to me with all of this and this site is a world of information!!! I and my mother both tell all of those we speak with about this site as my mother was the knoxville, Tn support group leader for several years. Due to family issues she had to quit but would love to be able to do it again. We believe it runs in families and we want to help all those we can with this horrible illness. We know so much about it since we have both been afflicted wit is horrific disease.

  • #2
    Thank you for sharing that with us. I am so glad the instills help you alot. Like you, I also do them at home and get alot of relief from them. Your Mother sounds like an amazing person. I am sure she feels as blessed to have you as you do to have her!

    Thank you for sharing your story so that others can benefit from hearing your experaince with Instills. Alot of people are terrified to try them b/c of the fear of caths. Like you, I find it much easier to cath myself than to be cathed by someone else! But, some let their fear of caths keep them from trying what could be the answer for them. I hope the ones who are afraid to try the instills will read your wonderful post and hopefully be encouraged to at least put a toe in the water and try one. I am not saying they work for everyone. I know some have had bad experiances with them too. But, I DO think that the instills are one more tool we have in fighting the pain, and would hate for anyone to dismiss them without giving them a try, (both at the Drs. office and doing them at home, since it is SO much more comfortable to cath myself!)

    Again, thank you for sharing! I look forward to reading more of your posts!



    • #3
      Nothing feels better than sweet success

      My urogynecologist feel that IC is a genetic "disease" that shows its ugly face after trauma to the bladder. It hit the nail on the head for me. Just 4 months after extensive pelvic reconstruction is when it all started.
      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
      My Helpful Hints for Home Instillation:

      Institute of Female Pelvic Medicine (J. Dell, My MD)
      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
      I post to encourage and offer total support for rescue instillations.
      Find me on facebook: L. Clark Thomas