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  • Well, that sure was painful

    Went for the instill this afternoon. Uro was home sick with that awful cold going around. First times he hasn’t been there due to being sick in the 8 years I have been there. The new nurse had to do it and I thought oh no. Some can not do the instill without causing pain. It went fine until she started putting in the cath. She kept pushing more and more of it in until I finally told her nicely it was in. They do know it is a short route to the bladder? I forgot how painful that used to be. All I could think was get it out get it out. Think from now on if Uro won’t be there then I will skip it. There is only the other nurse now ( since the original nurse who has been there from the start left) and she works mainly for the other doctor know.

  • #2
    Hey waterflow.
    Sorry about your instill experience, Ouch! It sure does make a difference on who is doing them. I had one nurse who completely sucked at doing it, and it hurt. Then I had one who I hardly even felt it. Hope your uro gets better quick!!
    Jen

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    • #3
      Ouch! I had a doctor put in a cath once and I swear it hit the top of my bladder and poked it, LOL! Seriously I could feel it hitting. Sometimes they really want to make sure that cath is all the way in. I'm sorry your bladder hurt when they did this. I know it's no fun. I hope you won't get a bad flareup or anything from this.

      Is the instill helping at all, though, do you think?

      Blessings,
      Lori

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      • #4
        I know exactly how you feel. I've had that happen a few times from nurses and I've done it to myself. Your bladder continues to hang on to that spasming pain for awhile. I've actually spasmed out the cath when that's been done...the install went everywhere. I think I'd op to not have her do it in the future either.

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        • #5
          I took the vicodin and that helped with the extra pain. Thank goodness for vicodin! After a few hours the bladder settled down so it is helping with the peeing but I do think when I see the uro next week (as long as he is well) I will tell him when he isn't there I will skip coming in. Have to make it sound nice. Don't want to hurt any of their feelings but if she has to keep doing them I will be dreading having it done.

          Lori, I could feel the cath hitting the bladder all the way around. I was starting to wonder just where the thing would go when it ran out of room.

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          • #6
            Ouch! That sounds like it hurts to much...
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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            • #7
              *cringe*
              http://www.TheCraftyEwe.etsy.com

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              • #8
                Sorry Mary that the cath hurt you. I think I would do the same thing and wait for the doctor to come back. Glad you have some pain medicine to help with the pain.

                Sending hugs, Trishann

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                • #9
                  I really didn't know that cathing could be painless until I started self cathing. If you have someone that can cath you without pain I say
                  forget everyone else
                  TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                  My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                  Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                  Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                  I post to encourage and offer total support for rescue instillations.
                  Find me on facebook: L. Clark Thomas
                  Louann

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