Hi ladies.
I have a couple questions. I am seeing a new urogyne this Tuesday to get another opinion. The urogyne I am currently seeing has me doing the instialltion with heperain,marcaine,biocarb,and kenalog.
I have had three done so far. They helpe some with the pain, but I also had some bad reactions as well( as you all already know from all my previous posts on this issue). I get urine retention every time I have an instill. I have to cath the meds out as I cant pee at all after the instill. Also after the second one, I felt sooo bad like I had an infection and took some antibiotics and got better within three days, so I am sure it was an infection, though they never documented it at my doctors office since I did not do a culture to prove it.
The nurse called today to remind me that I have my fourth instill I am suppose to do next Friday the 20th. She said it takes 6 instills to get better. I am so skeptical of this. I have never heard of anyone getting better after 6 instills where they could just stop them and be fine for months or years.
I am also kind of stuck in like a rock in a hard place. I mean the instills do help me some with the pain, but also I do have a reaction to the instill and have retention afterwards and have to cath out the stuff. This bothers me alot.It bothers me more that my urogyne is not willing to change anythig. She claims this is what works.But I feel I am not like everyone else, and I am having a reaction as when I asked the nurse if any of her other patients could not pee afterwards, she said this has not happnened to anyone else. That tells me that I am very sensitive to the instills, likely the marcaine. But she would only reduce the amount to 25ccs and no more. I guess that is why I am getting another opinion on Tuesday.
I never get rid of one doctor until I find another that I believe will help me. I had to fill out a form that the new urogyne sent me and it asks for names of all physcicians that have treated me for this. I am leary to put any names down in fear in he will call her. I mean what if he is no better than her. I dont want him to ruin my relation with her ( not that I have a great one with her anyways
, but you know what I mean). How do I broach this subject? I mean if I tell him I already have a urogyne, I just want to see what he offers, he may not like that, that I am being treated currently, but want just his opnion on things.
I have talked to three women who I met at an IC group that see this new urogyne I am suppose to see on Tuesday, and they all say he is very nice, and they are happy with him. So I am hoping he is good. I also met a wonen who see's the urogyne I am seeing now, and she also does not like her and is looking for another one( what a small world). I just want to phrase my words right. I cant believe I am feeling worried about getting a second opinion in fear that if my urogyne I see now who is treating me finds out, she will be ******. I know I should care less, I mean it is my body. But when I had my first appointment with her, after telling her that I had seen a couple doctors before even her, she said that I need to stop going to all these doctors and stick with one.
I wanted to tell her I would have if I would have found one who actually knows what they are doing, but I knew she would not have liked that
How do I go about this? Also, as far as the instills, Am I right in being concerned about the fact that every time I have one, it makes me have urine retention? I just dread when I have to have one, because I have to leave my whole day empty because I know I will have to be at home the whole day. I mean I have to hold the stuff in for two hours and then I know I will have to cath the stuff out and it takes me about the whole day to recuporate from it and to be able to pee right again. I just dont feel this is right. My doc made it seem like it was no big deal and to just cath if I have to. I dont like that either, as I am prone to getting infections, and I dont nessasarily like having to get cathed. My thought was that she should have lowered or chnaged the meds or something, but she will not.
Any advice is welcome and appreciated.
Jen
I have a couple questions. I am seeing a new urogyne this Tuesday to get another opinion. The urogyne I am currently seeing has me doing the instialltion with heperain,marcaine,biocarb,and kenalog.
I have had three done so far. They helpe some with the pain, but I also had some bad reactions as well( as you all already know from all my previous posts on this issue). I get urine retention every time I have an instill. I have to cath the meds out as I cant pee at all after the instill. Also after the second one, I felt sooo bad like I had an infection and took some antibiotics and got better within three days, so I am sure it was an infection, though they never documented it at my doctors office since I did not do a culture to prove it.
The nurse called today to remind me that I have my fourth instill I am suppose to do next Friday the 20th. She said it takes 6 instills to get better. I am so skeptical of this. I have never heard of anyone getting better after 6 instills where they could just stop them and be fine for months or years.
I am also kind of stuck in like a rock in a hard place. I mean the instills do help me some with the pain, but also I do have a reaction to the instill and have retention afterwards and have to cath out the stuff. This bothers me alot.It bothers me more that my urogyne is not willing to change anythig. She claims this is what works.But I feel I am not like everyone else, and I am having a reaction as when I asked the nurse if any of her other patients could not pee afterwards, she said this has not happnened to anyone else. That tells me that I am very sensitive to the instills, likely the marcaine. But she would only reduce the amount to 25ccs and no more. I guess that is why I am getting another opinion on Tuesday.
I never get rid of one doctor until I find another that I believe will help me. I had to fill out a form that the new urogyne sent me and it asks for names of all physcicians that have treated me for this. I am leary to put any names down in fear in he will call her. I mean what if he is no better than her. I dont want him to ruin my relation with her ( not that I have a great one with her anyways

I have talked to three women who I met at an IC group that see this new urogyne I am suppose to see on Tuesday, and they all say he is very nice, and they are happy with him. So I am hoping he is good. I also met a wonen who see's the urogyne I am seeing now, and she also does not like her and is looking for another one( what a small world). I just want to phrase my words right. I cant believe I am feeling worried about getting a second opinion in fear that if my urogyne I see now who is treating me finds out, she will be ******. I know I should care less, I mean it is my body. But when I had my first appointment with her, after telling her that I had seen a couple doctors before even her, she said that I need to stop going to all these doctors and stick with one.
I wanted to tell her I would have if I would have found one who actually knows what they are doing, but I knew she would not have liked that

How do I go about this? Also, as far as the instills, Am I right in being concerned about the fact that every time I have one, it makes me have urine retention? I just dread when I have to have one, because I have to leave my whole day empty because I know I will have to be at home the whole day. I mean I have to hold the stuff in for two hours and then I know I will have to cath the stuff out and it takes me about the whole day to recuporate from it and to be able to pee right again. I just dont feel this is right. My doc made it seem like it was no big deal and to just cath if I have to. I dont like that either, as I am prone to getting infections, and I dont nessasarily like having to get cathed. My thought was that she should have lowered or chnaged the meds or something, but she will not.
Any advice is welcome and appreciated.
Jen
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