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  • RMSO on hold

    Urine test this morning came back with moderate blood, moderate bacteria and 24+ WBC .... I knew my urine shouldn't be smelling like rotten eggs.

    My primary started to order Levaquin 500mg AGAIN when I told her I want something different cuz I was just on Levaquin 2 wks ago for upper respiratory and I'm tired of taking Levaquin every month or so for bladder infections anyway. We agreed to try Cipro knowing it may not be strong enough. We'll get the culture results by Friday.

    I contacted my uro who said he can't continue the RMSO until the infection is gone. I rescheduled my appt for May 4th - which will be 3 weeks from my first treatment so we will basically start over.

    I saw my GI this morning about the upper abdominal pain (see previous post for more details) and he diagnosed a moderate case of gastritis. He ordered Bentyl for the stomach spasms. I read the medicine information that comes with it and it is also used for bladder spasms. Maybe I can knock out 2 problems with one med!!! (instead of multiple meds for one problem)
    Tara (tbokay)

    Age almost 33! (4/27)
    Single - no kids, but 1 cat, Bianca QT
    Diagnosed mild IC in Oct 2004 - but on 11/7/05 told I DO NOT have IC (even though 2 other doctors agree that I DO have IC)
    2nd cystoscopy 10/6/06 confirms I DO have IC! 3 out of 4 urologists agree ... It's not in my head!

    9/11/06 Urodynamic results - bladder wont hold more than 200cc without causing retention due to lack of strength in bladder to start urine flow.
    5/3/06 had IVP that revealed "mild swelling" of right kidney and ureter due to "recurrent infections or urine backup into kidney"
    4/13/07 - started RMSO once a week for six weeks - ON HOLD DUE TO INFECTION!!! Scheduled to start again 5/4/07.

    Past meds:
    Elmiron - severe nausea
    Prosed - triggers migraines
    Fentanyl - 3 day pain patch - lasted 36 hrs before I had to remove due to adverse reaction
    Vicodin - stopped working
    Tramadol - caused urine retention
    Fioricet - caused urine retention
    Nitrofurantoin (antibiotic for 3 months)
    Celebrex 200 mg
    Pyridium 200mg (for 30 days supply)

  • #2
    Sending a hug & hoping you are feeling better very soon-
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "


    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

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    • #3
      I hope the cipro works for you so you will feel better soon.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

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