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  • Cystistat

    Has anyone had experience with cystistat? I have not been helped by DMSO and I am in a bad flare and need to try something new. If you have used it, did you try it alone or combine it with other things? How many treatments?

  • #2
    hi,

    cystistat is usually given 4 consecutive weeks, then once a month. it's better when given 6 weeks but 4 weeks is a must. I personally had no success with it, but I do know patients who had very good results, even leading to remission. the good thing is, i never heard of anybody being in pain afterwards. cystistat is as far as I know from me and other patients always given alone.

    good luck
    I'm german, diagnosed september 2005 with mild IC. Current meds: Elmiron, Uropol-S, IC diet.

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    • #3
      cystistat

      i instilled cystistat my doc got it from Canada for me.
      It didn't help me, but i know it has helped others!
      good luck

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