Cystistat

[Kathleen Philli IC Friend Find all posts View Profile Close Kathleen Philli]

Has anyone had experience with cystistat? I have not been helped by DMSO and I am in a bad flare and need to try something new. If you have used it, did you try it alone or combine it with other things? How many treatments?

[blendno14 ICN Member Find all posts View Profile Close blendno14]

hi,

cystistat is usually given 4 consecutive weeks, then once a month. it's better when given 6 weeks but 4 weeks is a must. I personally had no success with it, but I do know patients who had very good results, even leading to remission. the good thing is, i never heard of anybody being in pain afterwards. cystistat is as far as I know from me and other patients always given alone.

good luck

[wolfaleena ICN Member Find all posts View Profile Close wolfaleena]

cystistat

i instilled cystistat my doc got it from Canada for me.
It didn't help me, but i know it has helped others!
good luck