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Hi everyone.... my friend just went to the Dr.'s office for a treatment and the nurse said, "Oh, why don't you get the new surgery for IC?" She described it as "bladder scraping". She said it works.... has anyone heard of this??????????
I read about this back when my IC first started 9 years ago. It is very very painful and you are in the hospital for a while. Plus it doesn't cure it. Haven't heard anything about it sense then.
Ouch! I have never heard of it, but the hydro seems bad enough to me. Sounds like it's not something that is used very often if there is no info in the patient handbook about it. I would be very weary of a dr that is using old treatments that don't work.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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