How long do you hold meds from instill in?

[jen74 ICN Member Find all posts View Profile Close jen74]

Hey Ladies.
I was just curious how long do you ladies who do instills using heperin,lidoaine, and saline hold the medication in? My uro said I could hold it for up to two hours if I could, but at least to hold it for 30 minutes if I can, but to pee when I had to or if I was uncomfortable.
Just wanted to see how long you ladies hold the meds in? Thanks
Jen

[kadi Support Leader Find all posts View Profile Close kadi]

I use heparin, marcaine, sodium bicarbonate - I hold it from 50min to an hour. Longer than that I get burning....

[L. Thomas Support Volunteer Find all posts View Profile Close L. Thomas]

My urogynecologist was concerned that I hold it at least 20 mins but that has never been a problem. He said it really didn't matter how long to hold it. He said to hold it as long as it was comfortable. It is fairly common for me to hold it for 2 hours. Honestly when he said any length of time was ok I never worried about the length of time. I would do what your doctor tells you. There are so many different recipes I do whatever my urogyne says. I have been doing instill for 3 years and I haven't had problems even when I go sleep and wake up 3 hours later to go to the bathroom.

Just remember instills can be very different and can effect people differently.

[tigger_gal ICN Member Find all posts View Profile Close tigger_gal]

I was under the understanding that it was 20 mins. I know when I took my mom for the dmso's they told her 20 mins.
Maybe the info from the pharmacy would give you a better description.

[L. Thomas Support Volunteer Find all posts View Profile Close L. Thomas]

I was under the understanding that it was 20 mins. I know when I took my mom for the dmso's they told her 20 mins.
Maybe the info from the pharmacy would give you a better description.

I have never had DMSO but it is quite different from rescue instillations. I can see that holding DMSO instills could be painful. Most of the post I have read talk about the pain of having DMSO instills and instills that have steriods in them.

[tigger_gal ICN Member Find all posts View Profile Close tigger_gal]

Most of the post I have read talk about the pain of having DMSO and instills that have steriods in them

well no wonder they hurt then, I had no idea... and lets not forget the nasty taste and the garlic smell. so this then would be a different typr of instill.. thanks for the up date pn the difference of the 2.

[L. Thomas Support Volunteer Find all posts View Profile Close L. Thomas]

well no wonder they hurt then, I had no idea... and lets not forget the nasty taste and the garlic smell. so this then would be a different typr of instill.. thanks for the up date pn the difference of the 2.

I hope I haven't confused anyone. DMSO instills don't have steroids in them. There are some instills that have steriods in them. These 2 types of instill are the ones that I know hurt many people.

Rescue instills are painful to some. I know that some have the exact same recipe as me and the instills are very painful for them. I have never had pain from my instills.

[Berkshire Road ICN Member Find all posts View Profile Close Berkshire Road]

My doctor says 90 minutes for heparin, lidocaine and sodium bicarb. I find the instills very comfortable, my bladder feels really good with all that lidocaine, but I'm fortunate in that I respond very well to lidocaine and never have problems with it. I understand it can burn some people.

I usually manage the 90 minutes. I do the instills 2 or 3 times a week at home, and whenever I need a rescue.

[Kathi Support Volunteers Find all posts View Profile Close Kathi]

I held the DMSO for 20 minutes & the hep cocktail for as long as I could. Sometimes 3 hours. Kathi

[TexasHoney ICN Member Find all posts View Profile Close TexasHoney]

I try to hold it 30-45 with heparin, lidocaine and sodium bicarbonate if my bladder will allow me. Somtimes the pressure is just too great and I can only hold it for about 20 min. 20 minutes is all I could with dsmo a couple years ago.

[jen74 ICN Member Find all posts View Profile Close jen74]

Thanks for all the responses, I appreciate it. I have been holding the meds for an hour to hour in half if I can. That is what I was told to do, just wanted to see if that was safe to do or the norm when it comes to the rescue instills. Thanks again ladies, you are the best.
Jen

[mary124 ICN Member Find all posts View Profile Close mary124]

When I was doing DMSO treatments I was told anywhere from 20 minutes to an hour, if I can hold it that long.

[girl ICN Member Find all posts View Profile Close girl]

When I was doing DMSO, I was told to hold it for at least 30 minutes. I would be shaking and crying by the end of that, it was so painful (it also didn't help me)
Now I do heparin instills; they actually give relief as soon as they are in and I usually have no problems holding 90 minutes to 2 hrs.

[cia ICN Member Find all posts View Profile Close cia]

The NP told me to hold the heparin instill for at least an hour, but I found it hurt my urethra to pee it out so I usually held it much longer. About 3 hours most times. I never did home installations, my belly is so big, and in the way, I don't think I would have the coordination to do them. I couldn't get rid of the DMSO fast enough, and of course my doctor told me that "pain is not indicated with this treatment" What I wouldn't give to instill some DMSO into that guy.