URO wants to try DMSO....have had "resuce" instills......???

[stac7_8]

My URO phoned me today...yep the doc called me not his RN.:woohoo:

He truly wants me to do the Hydro....but I can't afford to do that at this time, so he says that he has been doing some research and says that he has never done instills in the office but that he has always wanted to. So what better why to start then with me. Boy that made me feel special.

Ok here is the MILLION dollar question....I had 2 instill "resuce" treatments by another doc when I was first DX. I had the PST done first then they gave me the "rescue" med since I had the reaction. Went in the following week and had another one done.

So I'm not sure if I should try this once again. On one hand I did not do it for the full 6 weeks, this was because the doc office said it was going to fall under my out of pocket and that I had to pay "my acct" up which was 600 + dollars before they would see me for a third time. Well 3 months later...my ins paid the hole thing except 50.00 total. :woohoo:

Now for the other hand....

I asked the doc if he thought it was worth it and he said you don't know till you try. I agree with that, but at the same time....to me it wasn't worth it .....I had a UTI after the 1st one and the second one my uretha hurt for ever it seemed.

I'm just not sure what to do.....any advise or commets or experiences would be most welcomed. Thanks in advance

[GriffsMommy]

So does he want to do DMSO or rescue instills? They are different. My uro just started the DMOS last week for me. I'm not sure how I feel about it yet, it makes me feel pretty crappy after I have it done.
I did find a post on here under this section that talks about how anything more than 25% solution has shown to have the possibility of causing permanant damage to the bladder muscle. My uro's office usually does 50% DMSO but I insisted on doing 25% today and he was okay with that they just diluted it with sterile water.
I obviously just started it myself but if you're thinking about it I'll answer any questions for you if I can. PM me if you want.

[stac7_8]

Sorry to confuse...the doc wants to do the DMSO.

But I have had the "rescue" treatments done.

I just don't know if it is going to help. I also read that one. Thanks so much.

I'm in so much pain it is crazy but I want to get better, I just don't want my pain to inteseify

[Bessie]

They did not work for me in fact they made me feel much worse......but I have heard that they have helped others. Maybe you could try a couple of them and see what happens? I did four treatments and did not finish out the other two. I have also had the rescue treatments. Whatever you choose to do I hope it works out for you.

[stac7_8]

Thank you so much.....I'm just not really sure what to do.

I know that I don't want to be in pain!!! I'm going to sleep on it, my great grandfather used to always tell me never make a major decision with out sleeping on it.

So I guess that's what I'm going to do.

[ICNDonna]

DMSO helped me for several years. When I first started, the first few treatments were extremely painful for several days. In fact, I was ready to say "no more!" when one night I went to bed and slept all night for the first time in many years. That was enough to convince me to continue. By the time I completed the initial eight weekly treatments, I was only uncomfortable for the day of the treatment and then I felt better. I had monthly treatments for several years before they stopped helping.

You will want to be sure the solution is 25% or less DMSO to avoid muscle weakening over time.

Donna

[mary124]

I have had about 3 sets of DMSO treatments done, one was back in 1992 and yes, the first few times it did hurt, but like, all of a sudden, one night I slept thru the night. Even put me in remission for about 5 years, with just taking Elmiron. Good luck in your decision.

[DebbieD]

Back in the Late 70's I had the DMSO. It did not work for me either. It Made me smell like Garlic. It is supose to help Stretch the Bladder and Relieve the Pressure. But in my Case it did not work. It made my Hunners Ulcers worse.

Good Luck. Just try it okay.

Hugs
DebbieD