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  • I had my DMSO and it went well

    My Dmso went well. I ended up getting it today instead of friday. the only discomfort I had was with the cathether going in. I held in the DMSO/RIMSO solution for an hour. wasnt bad at all. I cant even smell garlic on me. my bladder feels ok too.with just a little urethral burning. next month Im getting hydrodistention under anesthesia with DMSO and a stronger cocktail installed. I cant believe all this time I chickened out cause of the horror stories that I heard about people being in so much pain from DMSO. For people considering, I would say go for it. We are all different and all bladders are too. I thought 100% that I would be in pain. turned out to be wrong. i do believe that it is painfull for alot of other people. I prayed this morning before I went that I wouldnt be in pain. Prayer is so powerfull. I need to do it more.
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

  • #2
    Glad it went well.. I know the cath going is a drag but only for a few seconds.. I could not smell the garlic but my husband sure could!!!!..He could smell as soon as I got into the car..Great you held it for that long.. I made it to 20 mins... but it was hard for me to keep it in that long.. 2nd one is on Fri for me.. and your right I put it off for 6-7 years -- and all that worry ..and really not nearly as bad as I thought it would be..
    Take care
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)

    Comment


    • #3
      yea I have to wait till the hubby comes home to see if I smell offensive. My uro told me that most of his patients get dmso on average once a month or on an as needed basis. it seems like much less than others. hopefully its effective. the procedure that Im getting mext month (DMSO,hydrodistension and a bladder cocktail under anesthesia) he said that this combination provides his patients the longest relief.
      Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

      I have moderate-severe IC

      Currently stopped taking all medications due to pregnancy

      Comment


      • #4
        My husband said it smelled like I had been cooking with garlic all day. it lasted about 48 hours.. I am suppose to get a hydrodistension done but it probably will be months before I get in..Not sure if they will put in anything or not..atleast I can get the DMSO done just at the local hospital..

        I felt really good right after the treatment but about the 3rd day after I really had a flare up..but it only lasted a day or so.. may have been something I ate but I could not trace it back to anything that could have bothered me so not sure..
        God brought me to it, He will bring me through it!!!

        Diagnosed 2003
        by cysto/hydro
        Elmiron took almost a year- made me sick, caused diarrhea
        Pyridium -Made me sick
        Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
        Tried DMSO instill- had 5 out of 6
        Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
        Cysto/hydro April 6th 2011-- on expansion only hold one cup
        IBS/ IC
        High blood pressure meds and Crestor
        Metformin (prediabetic)
        Sinequan (depression)

        Comment


        • #5
          Thats great that it went so well. Its good to hear the "good" stories too. I hope it brings you relief long term.
          Cindi


          Gelnique for frequency/urgency - works great
          Macrobid after sex
          Prilosec, continuous birth control pills
          synthroid .088mg, mucinex-d, restasis

          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

          IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
          AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
          AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
          Great treatment flowchart on page 19 of the pdf

          Comment


          • #6
            thank u
            Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

            I have moderate-severe IC

            Currently stopped taking all medications due to pregnancy

            Comment


            • #7
              Hi
              I had my second DMSO today.. Had to wait an hour and half before I got in.. Out patients were really busy again.. I held it for 20 mins.. and barely made it to the bathroom which I had to go into hall and next door down.. I am burning right now and have a depends on because I don't have the energy to run to bathroom everytime I have to go which right now is like every 5 mins.. That lasted a couple of hours last time then it was better.. so 2 down - 4 more to go!! I hope I can stick to it..
              Take care
              God brought me to it, He will bring me through it!!!

              Diagnosed 2003
              by cysto/hydro
              Elmiron took almost a year- made me sick, caused diarrhea
              Pyridium -Made me sick
              Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
              Tried DMSO instill- had 5 out of 6
              Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
              Cysto/hydro April 6th 2011-- on expansion only hold one cup
              IBS/ IC
              High blood pressure meds and Crestor
              Metformin (prediabetic)
              Sinequan (depression)

              Comment


              • #8
                I hope that it works for you ! u seem like u have been really hanging in there. Btw my hubby told me I didnt smell like garlic. so getting the dmso was a piece of cake. However, I dont feel a difference in symptoms. but im getting hydrodistension+DMSO+bladder cocktail done in a few weeks. I hope that works. I hate wasting time or money.
                Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

                I have moderate-severe IC

                Currently stopped taking all medications due to pregnancy

                Comment


                • #9
                  today my husband said the smell of garlic was not nearly as bad as the first time. I feel fine now-- have been out and used the roof rake to get some snow of the roof..and did some shoveling too.
                  I had a presc. for DMSO and took what I had in but they provide it at the hospital so don't need to take my own anymore.. We have Blue Cross that pays for most stuff.. Thank God for that..
                  God brought me to it, He will bring me through it!!!

                  Diagnosed 2003
                  by cysto/hydro
                  Elmiron took almost a year- made me sick, caused diarrhea
                  Pyridium -Made me sick
                  Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                  Tried DMSO instill- had 5 out of 6
                  Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                  Cysto/hydro April 6th 2011-- on expansion only hold one cup
                  IBS/ IC
                  High blood pressure meds and Crestor
                  Metformin (prediabetic)
                  Sinequan (depression)

                  Comment


                  • #10
                    Ic

                    I am so glad the DMSO went well for you, Iam confused though why they are doing a hydro with a stronger DMSO. I have had the DMSO treatments in the office 1 every week for six weeks and that did the trick for me. I just thought they would do at least 6 DMSO treatments on you before trying the other where you have to be in the hospital. I hope all will go well with you , but you might want to ask your uro about 6 DMSO first. I know everyone is different but I am learning new things my self and I am just curious.
                    <center>
                    <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
                    </center>

                    Comment


                    • #11
                      Hi
                      MY uro suggested the 6 Dmso treatments for now. It can be done much quicker seeing it is done by nurse at the local hospital... and then the cysto hydro--- To get the Cysto- Hydro distension could be a 5 months + plus wait here ..My Uro said he does both ..for most patients.. I was diagnosed by a cysto hydro back 6-7 years ago and did not want to try the instills.. Tried Elmiron.. which made me sick! but I did take it almost for one year..

                      The instills scared me but now that I have had two.. I wish I had tried them a long time ago... All that worry about it ...and it really has not been bad at all...
                      God brought me to it, He will bring me through it!!!

                      Diagnosed 2003
                      by cysto/hydro
                      Elmiron took almost a year- made me sick, caused diarrhea
                      Pyridium -Made me sick
                      Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                      Tried DMSO instill- had 5 out of 6
                      Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                      Cysto/hydro April 6th 2011-- on expansion only hold one cup
                      IBS/ IC
                      High blood pressure meds and Crestor
                      Metformin (prediabetic)
                      Sinequan (depression)

                      Comment

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