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Anyone have this done? I have done like every treatment and my MD wants to try this...and no one has looked inside in like 6 years...would love feedback. Thanks
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I am blessed to have an Indiana Pouch now
IC since childhood, finally diagnosed at 31 yo
PFD/Pelvic Pain,SI joint and LBP
Low Back Pain s/p spinal fusion at 19 with more nastiness in back
Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
Hysterectomy 2/3/12 w one ovary removed
Dry Eyes
L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
Still have issues, still take meds.
I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:
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yes
I had this done in 2006. It was the first and only procedure I've had for IC. I think it worked too! I stopped having symptoms up until January 2011. Now I'm in a horrible flare again, but I had a few bladder infections Sept-Dec 2010 that I think caused my relapse.IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...
Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH
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