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1st Uracyst Instillation Wednesday! Anyone else tried it yet?

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  • 1st Uracyst Instillation Wednesday! Anyone else tried it yet?

    Just wanted to report that I'm having my first Uracyst instillation on Wednesday! Has anyone else tried it yet? I'm in Spain and my doctor said he's heard that people get better results from it than from Cystistat. I'm very nervous because I was finally contacted by my employers (I've been trying to get info from them for weeks on their policy for sick employees!!). They said they would essentially "accept my resignation" if I could not come back to work by Wednesday. I explained that I finally begin treatments on Wednesday and that I would be back THursday...so, I'm hoping for a miracle even though I know it can take several instillations for results. Also when I had the catheter in for my cystoscopy last week it was the most intense pain I've ever experienced in my life, and then my symptoms were much worse for a few days following. SO, wish me luck, and I"ll be reporting back to let everyone know how the Uracyst is working!

    besos,

    Danielle
    IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
    Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
    Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...

    Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
    Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
    Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
    Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH

  • #2
    i wish you the best.
    <center>
    <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
    </center>

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    • #3
      Wish you luck!! I hope the Uracyst works for you.

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      • #4
        Hi Danielle,

        My Dr also said that he's had better results from uracyst than cystistat. I am going Tuesday to start having them. Have they done anything for you?

        Sarah.x

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