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So, I thought I was in remission last Fall after doing a course of Uracyst. Now my frequency symptoms have come back after not being on anything for 4 months. I've done 6 weekly instills with sporadic relief. Any insight on this one from people who use it? Should I keep going? Try something else? I"m also back on elavil and atarax and quercetin with aloe to help with symptoms. Many thanks everyone!
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My story:
31 year old teacher from Canada
I have had ic for 8 years
I currently take:
Elmiron 2 twice a day
Atarax 25mg a day
Elavil 25 mg once at night
Rescue instillations: First 9 over 3 weeks then starting a maintenance at once a week
Glucosamine
Aloe Vera capsules
naturopathic medicines
trying lyrica at 300mg 3x a day
Trying Uracyst instills
acupuncture
:woohoo:
Based on Dr's findings during bladder distension was diagnosed with "severe" ic in Winter of 2006.
Tried and failed:
Ditropan xl ( Made me feel much worse) -
Hiya,
Sorry nobody has answered your post. I cant help you as I havent had these yet but I know my uro does uracyst instills so Im thinking I may have them soon. How many did you have and how long did they take to start working?
Hope somebody else answers your question and you start to feel good again soon!
Sarah -
I just started Uracyst treatments today. I know a friend of mine who also has IC has been doing monthly treatments for 1 year with great results. Maybe you just need to continue treatments?? Are you following the diet?Originally posted by erikaic View PostDaughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.Comment
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