Uracyst Help

carole

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Join Date: Oct 2009

Posts: 1134
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#1

Uracyst Help

05-20-2011, 04:56 AM

I had my first Uracyst treatment yesterday and it was soothing in my bladder. I felt good all day yesterday and up until this am. I started to feel a little crampy, had bowel movement(sorry for the graphics) and then about 1 hour later I was in full flare. Burning, pain, feeling like a have to pee. It feels like I ate something I wasn't suppose to when I didn't. Could this be from the Uracyst treatment? Anybody else experience this? Help would be appreciated. I am so frustrated

Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)

Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.

Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.
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ICNDonna

ICN Staff

Join Date: Mar 2000

Posts: 44491
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05-20-2011, 05:54 AM

I haven't tried this particular medication, but I do know that sometimes instillations can cause some pain --- even the ones that end up being helpful.

Warm hugs,
Donna

Stay safe

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Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]

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