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4 Weeks of Instills and No Improvement -- Give Up?

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  • honeymuffin
    replied
    I had the DMSO instills for 6 weeks, which I know are different than the self instilled cocktails but still I thought I'd share my experience. I'd also read in Dr.Moldwin's book that if I'm not seeing any benefit after the 4th session it's probably not worth continuing, but I'm glad I stuck with it. I didn't see any improvements through the course of the treatment. I started feeling 100% better about a week after completion but there were other factors involved (being on vacation, no work or traffic stress, being active, being in a good mood, possibly healthier food and more alkaline water where I was vacationing) . After vacation some of my symptoms came back but a lot milder than before. My doctor says that's not typical and it's hard to say what effect the DMSO had in my sudden improvement, but even if it was just a little bit I'd do it all over again.

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  • ICNDonna
    replied
    I suggest you find out what's in the solution being instilled. Sometimes it takes doing instillations on a regular basis to feel better. Many ICers do their own at home.

    Warm hugs,
    Donna

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  • wizbe
    replied
    Don't give up yet! It took me about 20 instills before I noticed a huge different. The first instill I had - I got about 2 hours relief - just took the edge - by the time I had the 20th instill - I was getting a week of relief. Don't give up yet. Have you tried uracyst? That was helpful for me.

    Wizbe

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  • bunnykinb
    replied
    Definitely, don't give up. It took me months to bi monthly instills to eventually feel better. I do the instills at home now for almost 3 years. I still get flares during my period, but compared to where I was at 3 years ago, I have no complaints. I was diagnosed in 2004 and had lots of burning on/off for 3 years and 3 urologists later. I have to be consistent though.

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  • greeneyes
    replied
    Hello and Welcome, I started with instill whiched helped for awhile, then the pain came again, my uro and I decided my next step was a hydro which I had yesterday and I'm feeling good at the moment. You need to speak with your uro and let him or her know that your instills aren't helping. We are all different in what helps and you may need a different treatment. Good luck and I hope you find relief soon.

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  • cjc2011
    started a topic 4 Weeks of Instills and No Improvement -- Give Up?

    4 Weeks of Instills and No Improvement -- Give Up?

    I'm a recently diagnosed IC patient, and I've been doing weekly bladder cocktails (not sure what meds it contains) for the past month or so. Last week I changed to bi-weekly, so I've done 5 instills total and have seen no improvement of my symptoms.

    For those of you who have done instills before, did you see improvement this late in the treatment? It seems like most people find relief after the first 3 instills, so I'm wondering if it just doesn't work for me, and I should give up. Has anyone had success after the week 4? Is there hope, or should I try something else?

    Thanks for your help!!
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