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Hi,
I have had 3 and a half uracyst instills now. The reason I say half is because the first one I had, half of the liquid came running out straight away and then about 2 hours later, more came running out so I know I held in some for a good amount of time, just not all of it... Anyway, after my 2nd I was able to hold it and I had the best week Ive had since I got IC- going 3-4 hours without needing the toilet on some days!! But I've had 2 more now and I guess I may be expecting too much too soon but I dont feel as 'great' as I'd hoped since it seemed so good in the begginning. Bladder not been quite as good this past week (not flaring or anything, just not great). I will be having my 5th and 6th over the next 2 weeks (going to see if I can have a replacement for the 1st one that went wrong also).
Can anybody tell me when Uracyst started working for you? I know I wont get a large response cos not many people are on it in the US but any replies would be great- thanks!
Sarah.x
I have had 3 and a half uracyst instills now. The reason I say half is because the first one I had, half of the liquid came running out straight away and then about 2 hours later, more came running out so I know I held in some for a good amount of time, just not all of it... Anyway, after my 2nd I was able to hold it and I had the best week Ive had since I got IC- going 3-4 hours without needing the toilet on some days!! But I've had 2 more now and I guess I may be expecting too much too soon but I dont feel as 'great' as I'd hoped since it seemed so good in the begginning. Bladder not been quite as good this past week (not flaring or anything, just not great). I will be having my 5th and 6th over the next 2 weeks (going to see if I can have a replacement for the 1st one that went wrong also).
Can anybody tell me when Uracyst started working for you? I know I wont get a large response cos not many people are on it in the US but any replies would be great- thanks!
Sarah.x
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