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My First Instill and Questions

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  • My First Instill and Questions

    I had my first instill 7 days ago. I am still having relief!!! How long does this usually last? It is even helping frequency. And Dr. said they would show me how to do it at home. That seems scary, and it did hurt when they inserted and I had soreness all that day and air bubbles when I had to urinate? Will it always be like that on every day I have to do instills?

    Thanks, Jonathan

  • #2
    I'm so glad the instills are helping you. I had relief with the first four but only for a few days each time. I hope they continue to help you. I'm sure someone will be able to help you more than I have.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily


    • #3
      How wonderful that you got 7 days of relief! I've found that catheterizing myself is much more comfortable (once I got used to doing it) than having a doctor or nurse do it. Hopefully that will be the case for you as well. I have to do them twice a day, so I think that 7 days of relief is really great Hopefully this is the start of feeling better for you!

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest

      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!


      • #4
        Can I ask which instill you are having?



        • #5
          Mc 2203,
          It had 3 ingredients...Heparin, Sodium Bicard and I can't remember the 3rd.

          However I do take 4 elmiron a day, Cysta Q, one 25 mg of Hydroxydine at night, take Urogesic Blue as needed, follow IC diet, warm baths, PT therapy once a month and PRAY!!!