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  • Help!

    I know that alot of people have asked this question on this board. I have search them and read alot of them. But I am really just looking for a so input from those who have had this done and what their reactions were. I am going to begin this course of treatment after I have been putting it off for as long as I could. I am terrified of the pain being worse than it is now. Not that I am sure that it can be worse, but I am sure it can.
    The mixture they are going to use is:
    50 cc DMSO (Rimso 50 = 50% DMSO)
    10cc sodium bicarb
    10,000 IU heparin sodium
    80 mg gentamicin
    40 mg triamcinolone

    Does this sound right and what were your reactions to the instills?
    I really appreciate all the input I could get from everyone.
    Thank you very much....
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

  • #2


    I have had three treatments of the RIMSO thus far, and I have had negligible pain with the treatment. HOWEVER, my pain is much less than yours to begin with. I was diagnosed four months ago after a three month UTI (so I thought - of course, all my tests came back negative) After a hydroextension, my doctor confirmed IC. My bladder capacity at full capacity is 500 ml. The doctor insisted on the RIMSO.

    When thy put the catheter in, it's uncomfortable. But the solution does not hurt and it doesn't really irritate. Holding the solution in the bladder isn't painful either. However, after I go to the bathroom I feel urgency for about the next two to three hours. I also experience some cramping. I call it annoying. I can handle the pain with advil. By the time the advil wears off, I feel better. I have noticed increased capacity and less urgency through the treatments. The doc does have some stronger pain meds that you can take if you need them just prior to treatment.

    However, I have to mention - you will smell like chemical garlic for the next two days after each installation. You're really stinky if you are sweaty!!

    Hope that gives you an idea- Good luck with the RIMSO!