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  • First DMSO treatment

    So I am going in on Monday morning at 9 to have my first DMSO instill. I am super scared. I am trying to keep my nerves down but I am not sure I can do it. I am pretty sure that this is going to send me into a major flare before I go in for this thing.
    Can anyone give me any advice or tell me what I can expect on Monday please.
    It will be greatly appreciated.
    Kirsten
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

  • #2
    If you can manage to relax, it isn't bad having a catheter inserted. The DMSO sometimes burns for a while. I hope it goes well for you.


    Donna
    Stay safe


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    • #3
      Thank you Donna I appreciate all your kind words when I post a question. I will try to relax, the last time they cathed me for a clean catch it was awful...I the burning just about drove me nuts....it was bad.
      Started Vaginal Valium Suppositories April 2014
      Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
      Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
      Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
      Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
      Interstim repair December 2008,Removal of the Interstim August 2011,
      6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
      Diagnosed with Raynaud's Syndrome November 2013
      Ambien 5mg for sleep.
      Elivil 50 mg at bed
      Lisinopril 20mg in AM
      Effexor 225 mg
      Oxycodone 10 mgs 2 x a day for pain
      Baclofen 20mg 3x a day
      Phenazopyridine 200 mg as needed
      Omeprazole 20 mg at night
      Lyrica 450 mg daily
      Requip .50 mg at night
      Ketorolac 10 mg as needed for migraines

      Comment


      • #4
        You could ask them to use a little bit of lidocaine jelly on your urethra first, before cathing. This will numb it up and probably make it more comfortable. In addition, if you are allergic to latex, make sure to mention that - sometimes those red latex catheters can set off a reaction and make things worse, but there are other types of catheters that can be used instead. Other than that, just try to relax... take some deep breaths and think of a beautiful, happy place while you're at the doctor's office
        ****
        Jen

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

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