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  • DMSO while Nursing?

    I am scheduled to have a Cystoscopy, Hydro, and first DMSO treatment in surgery in a couple weeks. My Urologist suspects that I have IC, but is doing the surgery to further diagnose. If they do diagnose me with IC, then I will be heading back to the office weekly for 5 more DMSO Installations. The DMSO Installations that he does are also combined with Heparin and something else (I don't have the info with me right now at work).

    I have a 9 month old and am still nursing. My Urologist and the nurse were not sure if DMSO/Heparin/etc. were okay while nursing, so they were going to research for me. But, just wanted to check on here and see if anyone knows whether or not it is ok to continue to nurse with DMSO/Heparin.

    Thanks!

  • #2
    First off, do the treatments help you? Secondly I would check with a pharmacist which you may of done by now. Hope your getting better!
    Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

    Had a UTI in Oct 2009
    IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

    Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

    Diagnosed fibromyalgia/lyme disease in 1999
    Acid reflux since 1998

    Have tried the following therapies:
    pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
    Ativan-helps some
    Vicodin-some relief.
    ditropan-only caused fluid retention
    toviaz-same as abovee
    detrol-no relief
    hydroxyzine-get some relief but not for urgency
    valium-helps relax the muscles
    flexeril-same as the valium
    B&O suppositories-they help a little
    started estrogen cream
    starting effexor soon

    Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

    current meds and treatment:
    nexium
    ativan
    valium suppositories
    hydroxyzine
    IC diet
    methenamine mandalate
    estrogen cream
    effexor
    B&O suppositories

    Had bladder instills but this made the urethra spasms much worse.

    Had hernia repair with fundoplication dec, 2011

    Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

    Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

    Husband is my biggest supporter. I need the urgency to go away. What helps??

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    • #3
      Hi Nal, I am having my first treatment today - so not directed if it works or not I called a pharmacist, lactation consultant at the local hospital, and my naturopath. All said no research had been done on whether or not DMSO is safe or not while nursing. So, I am planning to pump and dump tonight.

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      • #4
        Kim, how did you make out today? Hope all went well. I have a child at home too and I know how difficult it is to have IC and be the mother of young children.

        Suzi

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        • #5
          Please give us an update
          Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

          Had a UTI in Oct 2009
          IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

          Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

          Diagnosed fibromyalgia/lyme disease in 1999
          Acid reflux since 1998

          Have tried the following therapies:
          pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
          Ativan-helps some
          Vicodin-some relief.
          ditropan-only caused fluid retention
          toviaz-same as abovee
          detrol-no relief
          hydroxyzine-get some relief but not for urgency
          valium-helps relax the muscles
          flexeril-same as the valium
          B&O suppositories-they help a little
          started estrogen cream
          starting effexor soon

          Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

          current meds and treatment:
          nexium
          ativan
          valium suppositories
          hydroxyzine
          IC diet
          methenamine mandalate
          estrogen cream
          effexor
          B&O suppositories

          Had bladder instills but this made the urethra spasms much worse.

          Had hernia repair with fundoplication dec, 2011

          Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

          Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

          Husband is my biggest supporter. I need the urgency to go away. What helps??

          Comment


          • #6
            I am at home and actually feeling great! I probably could have gone to work today, but took the day off just in case. I think that was a good decision though because I feel sort of loopy like my head is in the clouds, which is probably from the anesthesia.

            My doctor found inflammation spots on my bladder - he called them Petuchiae (not sure how to spell that)! My husband saw the pictures if my bladder and said the looked like small broken blood vessels. I go back in to meet with my doctor in 7-10 days to find out actual results and course of action. Most likely will have 5 weeks if bladder installations - DMSO, heparin and clorapactin mix.

            It hurt pretty bad right when I woke up from surgery - just felt Luke I needed to pee badly and my urethra was burning. Hurt like heck the first time I peed (major burning) and had blood. Once I took Vicadin I felt much better burning is now gone today - just slight twinges of pain during and tight after peeing, but other than that I feel great!

            Comment


            • #7
              I meant "right" after peeing not "tight" typing on my phone!

              Comment

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