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hair loss!?

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  • hair loss!?

    Has anyone experiences hair loss from using heparin in a bladder instill? I use it everyday and now I am experiencing the same hair loss - thinning - that I had when I took elmiron. Any ideas??

    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    i use heparin everyday sometime three times a day if needed i havent lost any of my hair but i guess it could be possiable because if you think about it they use heparin so the elimron will get into your systom quicker now this is just my thoughts i havent lost any hair or had hair thinning but i didnt on elimron either. I think i would ask my doctor or drug store. if you can't find the information on the net.
    Good Luck and keep us posted grouphug
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!


    • #3
      I, too, am having a problem with hair loss.
      I had surgery on Nov 12,which may be adding to the problem (they say around 12 weeks after surgery the stress on the body can cause hair loss).
      I am taking Elmiron (400 mg per day) and just
      finished my 4th DMSO/heparin instill.

      To compound the problem I had gastric bypass surgery in Aug of 2000, am supposed to take multivitamins every day, but have been unable to as they irritate my bladder. That with sticking
      on the IC diet, my overall nutrition is terrible.
      I am sure that is not helping at all.
      As soon as I get my bladder pain more under control I am going to try my vitamins again.

      Take care,


      p.s. I have thought alot about the hair loss issue, and it seems like if elmiron works for a person it is a really really good thing. So if that's what's causing my hair loss, I decided I would rather wear a wig and have less or no bladder pain.


      • #4
        Anestesia will cause hair loss. I would talk to the doc about the hair losss, maybe have your thyroid checked. Hugs, Kathi hi
        One Day At A Time


        • #5
          I've thought alot hair loss too...I'm not a vain person. If you've ever met me in person you'd know that...(Hell I went to college in Eugene, OR...University of Oregon) Anyway....When Elmiron Made my hair come out in clumps all I could think is what the hell is this doing to the rest of my bod???I tend to be bit in the naturalistic side of things...(ok...yes...I certainly want my morphine and valium) and have to say one body system going wrong indicates a problems elsewhere so what does that hairloss indicate (For me?) I know lot of folks tolerate it fine, and that's great, but I don't think folks are necessarily vain if they drop it when they lose their hair...something scary happens in your gut and you reliaze, deep down that something ain;t right! NEED TO STOP is the instict.

          SEE YA
          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

          Medications I CURRENTLY take:
          90 mgs Ms contin (45 mgs Am/PM)
          Percocet as needed
          Topomax 100mg day
          Ambien 10 mg bed
          desipramine 25 mgs

          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
          Albert Einstein


          • #6
            Yes, I experienced hair loss while I was taking bladder instillations with Heparin, but I was also taking Elmiron at the same time. Since I have stopped both the instillations and the Elmiron my hair is thickening again. I do have a thyroid condition, but that was not the problem that was causing the hair loss. I took the Elmiron for nearly a year, and decided I could live without it as it did not seem to make all that difference in my pain level.
            "We can do no great things; only small things with great love." Mother Theresa