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Not your typical catheter tube!

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  • Not your typical catheter tube!

    Today I went to a new uro and he is going to start me back on DMSO treatments because they work as good maintenance for me. He told me that instead of a catheter tube or pediatric tube for the instill they use a small size feeding tube because it is smaller than the smallest catheter. It takes a little longer for the med to go in but is worth the time to reduce the pain. Has anyone ever heard of this? I am having it done tomorrow so I will let you know what I think!

    Pam
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
    _____________________________

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    They are really very tiny and work well for many however they really hurt me but I've never been sure why. I also have trouble with an IV the whole time it's in so I've wondered if maybe I have a problem with plastic. But definitely try it! I finally settled on a pediatric latex catheter # 8 and that works the best for me but it's an individual thing. Good luck!
    Dianne

    My bellydance "sisters" , our dogs, and me.

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    • #3
      I had my DMSO today with my new uro and they used a small infant size feeding tube instead of a catheter. I didn't feel a thing when they put it in! It was wonderful! Now I am sort of flaring but I usually do for a day or so before I get better. Anyway, just wanted you to know that if you are still having instill with a traditional catheter - DON'T! Insist that your doc use something else because it is not necessary to suffer. My old uro used an adult size catheter and no numbing gel - I was too scared to insist but now I know better!

      Pam
      Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
      _____________________________

      DX: IC - November 2002 after hysterectomy
      Interstim implanted March 2006 - died May 2011
      Interstim replacement June 2011
      Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
      Docs: Pain management doc, urologist, family practice

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      • #4
        Try sitting on an ice pack. It always helped me after an instill. Kathi jester
        One Day At A Time
        Kathi

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        • #5
          Great idea for the feeding tube. I use a brand of caths called "Low Fric". They are self lubing and they work pretty well, too.
          I can do all things through Christ who strengthens me.

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