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How often?

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  • How often?

    If you are in a horrible flare and have never had rescue installations before how often do you recommend getting them? My urologist said daily, until things settle, but that sounds very excessive to me! I thought it was more like once per week.

  • #2
    Some ICers use them even more often than that --- once your bladder calms down, you may be able to gradually extend the time between treatments. Will you be doing them at home?

    Sending warm healing wishes,
    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      i would be doing them in the office. I have never seen anybody have them every day initially. Because it doesn’t give your bladder a chance to settle down after the first one. I could see doing them daily once you for sure knkw
      they are going to help.
      Hoping others who are currently doing instills will reply.


      • #4
        I've been doing them daily for 8 months at home. When in a flare I do them twice a day. I originally just did them 2 or 3 times a week in the doctors office. As far as letting the bladder calm down between installations I think that's only needed for DMSO, which I've never done. Rescue installations are calming to the bladder and not uncomfortable at all. To me, they have a numbing effect. My new doctor is a firm believer in home installations and they are a lifesaver for me. He said they don't cause any harm doing long term installations.
        Last edited by erinw1405; 02-08-2019, 11:27 AM.
        Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.


        • #5
          I was diagnosed about 15 years ago. The instillations controls my IC completely. When I first started I had 3 a week but I did need to increase to daily for a couple of months. Dr. Dell said in the beginning more than 3 a week might be necessary until things "calmed down". I needed 4 intillations over the last 2 years. If your MD said daily I am sure it is what he has found most effective way he treats IC. But if you are worried just tell him/her your concerns.
          TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
          My Helpful Hints for Home Instillation:

          Institute of Female Pelvic Medicine (J. Dell, My MD)
          Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
          I post to encourage and offer total support for rescue instillations.
          Find me on facebook: L. Clark Thomas