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Finding a Dr. who supports self instillations

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  • Finding a Dr. who supports self instillations

    I was lucky enough to find a Dr. who supported home instillations within a few months of being diagnosed. I've moved to the San Francisco east bay area and I haven't been so lucky. I've managed to finally convince my Urogynecologist to give me the prescriptions, but the sources her office found for the materials are SO much more expensive than the Atlanta area. Does anyone know of a Dr. who supports home instillations in the San Francisco area? The ICnetwork physician database didn't help. Does anyone order from an online medical supply company that ships anywhere in the US?

    Knock on wood, I haven't had to do an instillation in years, but I like to keep the materials on hand for emergencies.

  • #2
    Anyone??

    Donna
    Stay safe

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I'm a little south of you and I still haven't been able to find an affordable supplier for Lo-Fric catheters.
      Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!

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      • #4
        Have you thought about ordering the catheters from Canada?
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

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        • #5
          I order catheters from 180 medical. They have good customer service and files insurance. However, if you need to reach a deductible for your insurance to cover catheters than its not the most cost effective.
          Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.

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          • #6
            I do bladder irrigations at home with heparin, lidocaine and sodium bicarbonate. 5th urologist suggested Kenolog steriod to mix. Have you used steriod?
            bunnykinb

            6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

            tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning

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