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Complete relief from lidocaine?

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  • Complete relief from lidocaine?

    whenever I do a rescue instill (lidocaine, sodium bicarbonate, heparin, steroid), all of my symptoms almost instantly disappear for about an hour and then come back more tamely. I’m doing them once a day now since I’m in a huge flare. Does everyone else have this experience? Is it possible to live by doing like 3 or 4 instills a day? I know that sounds crazy but I’m just wondering out loud.


    Please don’t mention Liris... I know what it was and it will just depress me since it got canned... no use talking about it.

  • #2
    When I first started using the instillation I did have to do them daily and sometimes 2 times a day. I have used the heparin/lidocaine a number of years. Now I need them only during the fall a couple of times a week. I flare with seasonal allergies. Just talk with your MD. I feel sure if he/she has prescribed instills they understand they have to be regulated in the beginning.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas
    Louann

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    • #3
      Is anyone out there unable to get their bladder instillations due to heparin shortage?

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      • #4
        I certainly hope not! Too many of us depend on it.

        Donna
        Stay safe

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          I know this is a very late reply but I have been doing lidocaine, sodium bicarbonate and Elmiron installations 1-2 times a day since May 2018. I recently just starting using heparin instead of Elmiron due to fear of the eye issues. I think I might prefer Elmiron instead but it's very similar relief. I find tremendous relief and think its well worth constant installations.
          Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.

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