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Rescues instillations with elmiron

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  • #16
    Re: Rescues instillations with elmiron

    You can definitely react to medications that are instilled in the bladder. They can be absorbed systemically through the bladder. Also, if you have an irritated bladder that is inflamed, it can have tiny little cuts and sores where stuff can leak through. I know when I added kenalog( a steroid) to my instillation mixture back in the day when I was doing instillations, I got nasty side effects( awful dizziness and just did not feel well). As soon as I took that out, the symptoms went away. Also if you are allergic to something in the instill, this could cause you systemic reactions. I remember one urologist telling me there is no way I could have a reaction to something that is instilled into the bladder. When I went to see another specialist later on, he told me you absolutely can. Things can get absorbed through the bladder into the body.

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    • #17
      Re: Rescues instillations with elmiron

      thank u very much, part of me feels I developed an infection. so I will bring urine to dr tomorrow. he did say the same thing though. no cannot be absorbed systemically. I do beg to differ... I am allergic to sulfur. but I was told the sulfur in elmeron is not the same as in an antibiotic

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      • #18
        Re: Rescues instillations with elmiron

        Hi Donna
        My previous Dr told me I had 2 hunners lesions yet only prescribed myrebetriq for OAB. So I've been suffering for a year. Jill recommended Dr Kaufman in NYC and he is doing my 1st elmiron instillation on Monday.
        So I was wondering if I should wear a diaper on my way home which included walking, waiting for bus more walking and another 1/2 bus back to New Jersey and more walking!
        If apt is at 2:30 when should I take Uribel and take pyridium also? ?
        Is it very painful to most women? Duration of pain?
        And since the commute is very hard on me (have COPD) and SOB a lot, should I just request lesson and self-instill at home? He wants to do 2x a week for 3 weeks and I get that its income for his office but to hard on me. Also why subject your body to metabolizing via GI at all when so little reaches your bladder and probably hurts liver and kidneys?
        I KNOW our not a doc but you have had experience that would help many of us.
        Thanks! !!
        looloo (thanks for change too)

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        • #19
          Re: Rescues instillations with elmiron

          Originally posted by looloo View Post
          Hi Donna
          My previous Dr told me I had 2 hunners lesions yet only prescribed myrebetriq for OAB. So I've been suffering for a year. Jill recommended Dr Kaufman in NYC and he is doing my 1st elmiron instillation on Monday.
          So I was wondering if I should wear a diaper on my way home which included walking, waiting for bus more walking and another 1/2 bus back to New Jersey and more walking!
          If apt is at 2:30 when should I take Uribel and take pyridium also? ?
          Is it very painful to most women? Duration of pain?
          And since the commute is very hard on me (have COPD) and SOB a lot, should I just request lesson and self-instill at home? He wants to do 2x a week for 3 weeks and I get that its income for his office but to hard on me. Also why subject your body to metabolizing via GI at all when so little reaches your bladder and probably hurts liver and kidneys?
          I KNOW our not a doc but you have had experience that would help many of us.
          Thanks! !!
          looloo (thanks for change too)
          I have never had an instillation containing elmiron, but have had other solutions. If you'll be having them that often and it's a difficult commute, you might want to ask about doing them at home. It's not difficult --- the first two or three can be a challenge, but after that I didn't have any problem doing them myself. Most urologists have busy enough offices that having someone self treat isn't a problem at all. I suggest you ask ahead of time how long you will should hold the solution before you urinate. If it's something like a half hour or less, you might want to spend the time in the waiting room with a book before you start the trek home. If it's longer, I suggest you look at where there are restrooms on the way home --- and if it would make you feel more comfortable, you might want to wear an incontinence pad in case there's a little leakage --- when I was having instills, I used light panty liners. I still frequently wear them simply because I urinate more frequently than the average person and it avoids any dampness on my unders.

          I hope this works well for you.

          Donna
          Stay safe

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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

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          • #20
            Re: Rescues instillations with elmiron

            Okay, good info. Thanks!!

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            • #21
              Re: Rescues instillations with elmiron

              Thanks for all your wonderful help and responses...

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              • #22
                Re: Rescues instillations with elmiron

                I had my first instillation today and I am really hurting right now. Do you think it would be OK to take azo for pain?

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