I had to stop my instillations because they were causing me to flare worse than before doing the instillation. The pain was immediate! My abdomen would swell up within an hour and the pain was excruciating! I couldn't figure out why so I just stopped doing them. I just assumed that my bladder lining had gotten to thin. Recently, I started to read Dr. Larrian Gilliespies book on IC and it says that epinephrine can cause bladder pain due to the blood vessels constricting. Lidocaine, Marcaine both have epinephrine. So does Novacaine if you go to the dentist. This got me thinking.....I never liked how the novacaine made me fell so jittery so I would ask the dentist to give me carbocaine which does not have epinephrine. So, I started to think that perhaps I am sensitive to the epinephrine and that's what was causing me pain after an instillation. I did a bunch of different instillations but they all had marcaine and sterile water.........hhhhhhhhhhhhhhmmmm.
Any thoughts on this???
Any thoughts on this???

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