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  • Rescue Instillations 16 FR Catheter

    I had an instillation yesterday and the catheter said 16FR on the outside of the package. They used marcaine, solculef, and heparin. It was uncomfortable going in and then when I used the restroom the first few times it felt like I was peeing out razor blades. Is this normal??? It also feels like I have been punched in the stomach. I am suppose to have 1 instillation every week for 6 weeks and I am scared!!!
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

  • #2
    I have never had one so I dont know.. I just wanted to say I am sorry it was so painful for you..((((((((hugs)))))))))
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      How long did they have you hold the solution? When I first started with heparin/marcaine/sodium bicarbonate instillations, I could only hold the solution for 25 min. Now I've over time worked up to holding it for 50-60 minutes & that doesn't seem to cause the irritation holding it longer does.

      If you are having a lot of urethral burning, you might ask for a non-latex catheter and / or a smaller size. I found that even though I'm not officially allergic to latex, it burns. I now use a 12French non latex, but they do make pediatric catheters & that can be really helpful for IC patients.

      Hang in there--
      Kadi

      -------------------------------------------------------------
      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      ------------------------------------------------------


      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest
      "


      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!

      Comment


      • #4
        For instills I use a 8fr pediatric feeding tube so I think the one I use is 1/2 the size of the one you had. Some people are sensitive to latex. That may be a problem for you also.

        I have the "stomach punch" sometimes but not that hard. It is more like a backward UTI pain. Sort of a feeling that your bladder is "sucking in" that remind me of what the inside of a jar would feel like when you break the seal as you open it. But it is only mildly uncomfortable and it doen't happen all the time, maybe once in 6-7 caths.

        If solculef is a steroid that can cause pain also.
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

        Comment


        • #5
          My doctor gives me 10 fr. catheters for my at-home instills. As long as I relax before it goes in (breathing out can help a lot), I barely feel it. Maybe you could ask your doctor about getting a smaller size.

          I recently was in the hospital and had to have a Foley put in. Now that's a big tube -- not to mention that the nurse's technique was not exactly gentle. Ouch! I was bleeding from my urethra for two days afterwards.

          So, I think it's a combination of size (small is good) and technique (on the part of both the patient, who should breathe out as it's going in and relax as much as possible; and of the nurse, who should be aware of the patient's reaction and moderate her speed and force accordingly), that makes for a reasonably comfortable experience.
          Last edited by Berkshire Road; 04-18-2007, 03:44 PM.
          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
          Wishing you happiness and good health, and all the best out of life.

          Peace, Carolyn
          ___________________________________________________

          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


          On the Beach with IC

          Comment


          • #6
            One thing I know now is that everyone’s anatomy is different They are taught to stop advancing the catheter when the urine starts to flow and then back off a little. I think that sometimes they push it so quick that it hits the back wall of the bladder before the urine starts to flow. I think that I have been cathed before and the nurse pushed it too far and hit the back wall of my bladder. I have done instills for about 3 years and I know that sometimes the flow is slow starting. I know my anatomy well enough to tell how slow I need to go and when to stop and let everything catch up.
            TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
            My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

            Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
            Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
            I post to encourage and offer total support for rescue instillations.
            Find me on facebook: L. Clark Thomas
            Louann

            Comment


            • #7
              My nurse uses the pediatric catheter, I also take some pain pills before I go for my treatments. This seems to help also! The first seem to be the worst one, but I also felt funny in my stomach, it also hurt when the cath went in and also when comes out. After my first one I felt like i needed to go to the bathroom but would go and nothing would come out, also I burned to. But I only have to hold it in for 15 to 20 min. the doctor says after this time it really does not work. Bamafan

              Comment


              • #8
                16 French!! WOW!! and OUCH!! No wonder it hurt! That is HUGE! Well, at least to me....mine are 5 French, (less than 1/3 of the size of yours). I am a firm believer that size matters! I would definately be asking about using a smaller cath. It is bound to make a big difference.

                I also find that it is much more comfortable cathing myself than when others do it. Maybe it is b/c I always advance it VERY SLOWLY. But, like others, I have also been cathed by people who were rough and it definately hurt both during and afterwards.

                I hope your Dr. will agree to using smaller caths. I really think it would help alot.

                I hope your next one goes much better and that you start feeling better soon.

                Hugs,
                Amy

                Comment


                • #9
                  Thanks everyone for the suggestions. I go in next Monday for the second instillation and I will ask for the smaller size. I will also try to relax and not hold my breath too hard. I know I probably tensed up and that did not help at all. I am going to try a few more instillations and keep my fingers crossed that they help. My pain is 24/7 and I really need some relief

                  Thanks again.......I really appreciate everyone here
                  Miss Bessie

                  Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                  Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                  Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                  Comment


                  • #10
                    I am not familiar with instills (I haven't had one...yet) but 16fr is a common size for indwelling catheters, that much I know. I wouldn't call it "huge" but like I said, for this particular situation I am not very familiar. I know on my floor we stock 14, 16, and 18 for inserting foleys.
                    32 years old

                    former Med/Surg RN

                    endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008

                    Comment


                    • #11
                      I have instilled for a while now and I don't think I know anyone that uses larger than 10fr. The larger sizes do drain the bladder faster, but the way I understand it, instill are to calm the bladder and keep it from being stressed. Smaller catheters cause less stress and less pain for most.

                      I do know that when I had my last urodynamics the catheter was 22fr and the one for the scope was 25fr (or 27fr). I remember thinking "how is THIS going to feel?" I was shocked that I didn't have pain before, during or after.

                      I also self-cathed after out patient surgery with 16fr (they weren't going to let me go home until I peed so I told them I could take care of that if they would get me a catheter. Boy did they look funny but I got to go home). I didn't have problems then either. I really think I could use a larger catheter but it only takes 10 seconds or less to empty when I use the 8fr. And the 8fr is easier to store in the "carry with you bag" than a larger one.
                      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                      I post to encourage and offer total support for rescue instillations.
                      Find me on facebook: L. Clark Thomas
                      Louann

                      Comment

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