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DMSO or rescue instill? Which to choose....

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  • girl
    replied
    I started the heparin instills last fall. I was so afraid I threw up the first time!
    But after a couple of times, I began to see some relief, and after the series of six ended, I have stayed at a managable place, between the instills and my pain meds. (I can't take Elmiron). I go back once a month and get one, or as needed in between. They are fantastic, and I was in the worst flare I have had in all my years of fighting this when I started them!
    Hope they work for you!!

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  • L. Thomas
    replied
    I have been doing home rescue instillations since 2004. They work for me. I don't have any reason to look for any other treatment. I'll be glad to try to answer questions you may have about instillations. I know how apprehensive I was in the beginning.

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  • miasowell
    replied
    gonna ask about it when i go tom for another one.

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  • ICNDonna
    replied
    What did your doctor say about doing self instills? Sounds like the rescue instills may be helping you.

    Donna

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  • miasowell
    replied
    Sorry meant to say in the previous post that I would recommend it just for the instant relief alone. So what if the pain comes back at least I got relief for a while. Still not sure how long it will last

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  • miasowell
    replied
    1st Rescue!

    I got my first rescue Instill this afternoon. Man what a relief. But I did notice that my IC belly has gotten bigger since then. Is this a bad sign? Is this gonna hurt really bad later? Right now I am much relieved but Not sure how it's gonna go later after it wears off. Nurse told me 8 hrs Is that accurate?

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  • GriffsMommy
    replied
    Good luck Robin, I haven't done the instillations myself but I like you have read all the postive posts about how they help so many. From what I understand the DMSO can be very irritating at first, that is the one my uro said he would try if the meds he gave me didn't work. From what I understand the rescue instillations are supposed to be more soothing. If you're in such a major flare I would guess that the resue instill would probably be calming to your bladder but it's different for everybody I guess.

    My uro looked at me like I was crazy when I told him I had read the DMSO instills could be painful. He said that his patients had handled it well but if it was uncomfortable for me then we would discontinue them.

    I hope that you can get the rescue instill soon and start to feel some relief.

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  • mom_in_ma
    replied
    I've made up my mind, I'm going with the rescue instills. I called the doctor and they'll call back to schedule an appointment. Wish me luck! Ugh, this is so scary.

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  • mom_in_ma
    started a topic DMSO or rescue instill? Which to choose....

    DMSO or rescue instill? Which to choose....

    Well, I talked to my uro today and I think that I may give in and do instillations. He does DMSO, but he said he's willing to do a rescue instillation with the heparin, sodium bicarb, etc. However, I would be his first rescue instill patient. Honestly, I'm getting ready to call him back and say 'let's do it' simply because I'm so frustrated with this flare. But, I'm not sure which to choose. Any advice?

    I know dmso has helped a lot of folks, but it just seems so toxic to me and painful. The rescue instill, while gentle and soothing, needs to be done more frequently and I'm not sure he'll go for home instills. He's a nice uro and really does listen, but he's not at the forefront of care by any means.
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