? about docor that knows what rescue instlis are

efbrgnthm

ICN Member

Join Date: Dec 2006

Posts: 22
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? about docor that knows what rescue instlis are

05-28-2007, 03:11 PM

Aloha
I went to my uro last week and I told him that I would like to try rescue installations, and he didn't even know what they were! he said he was nearing the end of his career and wasn't "up on all the new things" he also said that I would have to go to another island to get treatment, which isn't easy, the only way to get there is fly and it costs a lot..... so I don't know what to do! anyone live in Hawaii know of an IC friendly urologist?
Mahalo

Caitlin
Diagnosed December 2004
Cytoscopy April 2007: 1000cc's capacity, no visible "IC", looked perfectly normal. Hydrodistention August 2007: again appearance of “normal looking” bladder. Surgery for bladder reflux in 1990, chronic bladder infections before that.

Medications: Oxycodone, Amitriptyline, Tizanadine, Lyrica, Ambien, Prilosec, Zantac, Zyrtec, low does Aspirin, (In the past I tried all the typical natural therapies out there without successL)

I don’t have “typical” IC symptoms,… I have a very large bladder (my Dr.’s eyes almost jumped out of his head when he saw my CT scan!) It seems to feel better the fuller it gets & the more I go to the bathroom, the more it hurts. My pain intensity doesn’t seem to be affected by diet or alcohol, that being said pain is my main issue, MAJOR PAIN!!! It sux!!
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