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I feel like I am going crazy

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  • I feel like I am going crazy

    I been diagnosed with IC since 2001. I get flares from time to time - this time it doesn't want to leave. Pressure and burning (after urination). My hiatial hernia is acting up - 3 weeks ago i took Prilosc for the heartburn and all of the burning both urination and heartburn stopped. I finished the 2 week Prilosec last week and now the burning is beginning. Does anyone know if any of this can be connected. The Gastro doesn't seem to know much about IC and the Urologist doesn't seem to think so. I'm not sure what to do.

    Any ideas???? :


  • #2
    I have a very acid stomach and I take a different form of Prilosec called Zegerid. It's just in powder form. I have been on it for almost 2 years now and before that I took Protonix for my stomach acid. I think for some there is definitely a connection. You should ask your dr if you can go back on the Prilosec and stay on it. Lots of people use it daily and I've read that it can definitely help with IC for some people. Charisse
    The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
    Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
    Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
    Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
    BABY GIRL 10/28/08 *** BABY BOY 7/8/11


    • #3
      I take prescription prilosec, 40mg 2x a day for severe acid reflux and I do notice a difference in my bladder burning when I forget to take it. You're not crazy!
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


      • #4
        I say if you are noticing an improvement it is worth checking into. I don't see where it would hurt you to stay on it full time since it seemed to be helping you. Keep talking with your Dr's maybe show them these other post from woman that has seen the same connection you have. Maybe just Maybe this will convince at least one of these Dr's in giving it a try.

        Good Luck and Best Wishes
        Medicine taken daily or as needed:
        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
        2. MS.Cotin 100mg 3x daily
        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
        4. Fentanyl 100 mg Change every 48hrs.
        5. Gentamicin 80mg install after each rescue treatment
        5 Leviquin 500mg self start as needed.
        6. Klonopin 1 or 2 daily as needed.
        7. Prosed/DS as 1 every 6hrs as needed.

        I have IC, but IC doesn't have me anymore!


        • #5
          It's been a while, but some months ago, there were people posting who felt they were helped by Prilosec. You might give it another try to see if it helps again. I do think you should talk to your doctor before taking it full time.

          Stay safe

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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Anyone who says something is foolproof hasn't met a determined fool


          • #6
            There are some small studies that show that Tagamet (another acid reducer) helps reduce IC symptoms. I think that the prilosec definitely could have helped with your burning.