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Could keeping the catheter in too long have caused a flare?

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  • Could keeping the catheter in too long have caused a flare?

    Hi guys. I need immediate help if possible. I have been making great progress over the past couple of months. I started out going to the bathroom every 5 minutes during the day and up to 20-30 times per night when I first woke up with IC back in Feb 2009. I have been on a bladder retraining schedule since March 2010 and am now up to 2.75 hours between voids. For me, this is HUGE. I have been doing instills for the past 2 1/2 months or so and they've been helping as well. I have been only getting up one time per night for the past month or so....again, this is a huge deal for me (compared to how it was)
    The doctor did the instills for the first 6 weeks or so and I've been doing them on my own for about a month. (I am not very good at it yet)
    I did an instill on Sunday and the medication wouldn't go down the catheter tip syringe and I had to leave the catheter in me and move it around and mess with it for about 5 minutes. I have been in a horrible flare (I haven't had anything like this in months) and I am trying to think of what it could be. I really didn't deviate from the diet. I did take the train for the first time in a year and I read that can impact your bladder, but I am doubting that is what caused it. Could it be caused by all of the messing around I had to do with the catheter and the fact that it was in my urethra so long?
    I don't know what to do. My health insurance was cut off yesterday and I'm waiting for COBRA to kick in, so I can't even see the doctor. I took a home UTI kit and it came back negative. I did another instill this AM in the hopes it would help, but so far, no luck. I am at my wit's end. I have a vacation planned this weekend that's been in the works for 6 months, and am all nervous it's going to be a nightmare because of this. I was doing so well and then BAM- major flare after not having had one since March. I just don't get it. Any advice on what could be going on? Is there anything I should be doing to make this flare end? I am so desperate here, I'd appreciate any advice you can give. Thanks all

  • #2
    My suggestion is to check to be sure you don't have an infection working.

    Warm hugs,
    Donn
    Stay safe


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    • #3
      Thanks Donna. I did check it out to be sure and sure enough, I don't have an infection. I wish it was that, so at least it could be treated! I went to the physical therapist today and she said my muscles were incredibly tense. It hurt like crazy (normally it doesn't). What is the average time for a flare like this to pass?

      Comment


      • #4
        I think just about anything can cause a flare
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

        Comment


        • #5
          I am still flaring like crazy, feel as though I have lost all of the progress I have made during the past 3 months and am falling into a deep depression. My COBRA hasn't kicked in yet so I had to cancel my appointment with my uro-gyn who I so desperately need to see. I haven't felt so hopeless in quite a long time. If anyone has any suggestions at all, I would love to hear them. This is just terrible. To come so far and to fall so hard, it is just killing me.

          Comment


          • #6
            Have you used ANY other ingredients in your instil or on your cath? Something in the instil or on the cath can cause that. I had so much trouble with the different kind of lidocaine gel on the cath. Then once changed I was better. Is the cath size the same? Latex vs non-Latex?
            Teresa

            We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

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            • #7
              When we are in pain we are desperate to find a solution. Dr. Dell said there is imperial evidence showing flares are directly related to the histamine response with allergies. Sine this is true maybe taking an over-the-counter allergy medication might be something you can try. Check with a couple of pharmacies to see what they recommend. Perhaps you could try a natural food store that might know something that would help.. Search some of the old post for information. There are 100's of threads that are inactive that will have suggestions that you might try.
              TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
              My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

              Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
              Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
              I post to encourage and offer total support for rescue instillations.
              Find me on facebook: L. Clark Thomas
              Louann

              Comment


              • #8
                I do take Benadryl every night. Do you think there could be a better allergy medication that can stop this flare? It is STILL here and today they did trigger point injections to try to help (this was my first time). Talk about pain. I can't really tell if it's helping. I was nice and numb down there for about 4 hours, but now it seems to be wearing off.....(although I am still bleeding quite a bit from the injections)
                I need to get out of this flare and back on track FAST.

                Comment


                • #9
                  Re: Could keeping the catheter in too long have caused a flare?

                  Iuse baking soda water when I'm in a flare. I drink some twice a day. That's not advisable if you have high blood pressure. I also take an extra daytime elavil. Ijust started self- cathing. What a relief to actually get an empty bladder.

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