Hi guys,
I am new to this forum and have IC for years and years ( since a teen, I think, if not before. ALWAYS had bladder issues) I was diagnosed in March 2008.
Since then I have had 2 hydrodistentions done, the last being in OCt 2010, which did not work. I got NO releif at all and was very disappointed.
My urologist has recommended home installations...
My first attempt was on Wed night....It took 3 catheters but I finally did it, although when I took the syringe off the end of the catheta, all the med came back out. ( I now know to leave the syringe attached and remove the catheta and syringe together!)
My second attempt was last night, and I finally got the medicine in! I am using heparin, lignocaine and water which i mix in a 50ml syringe (it makes about 20ml)
My Dr said to leave it in about 15-30mins. I left it in longer as i didnt feel the need to pee, is it better to leave it in longer? Does it work better?
I have been told to do this twice a week for 4 months but see my dr again in 1 month.
I still cant beleive I have to do this to myself, I felt really sad about it after I did it. But, anything is better than living with this pain.
I dont know anyone who has this condition, so this forum has been very helpful to know I am not alone. Most of you are American? Im from Australia.
Its just so awful to be in pain all day every day, every single time I go to the loo..no-one really understands what its like.
Hoping to meet you all and wanted to say that louanne, your step by step guide to installations really helped! thank you
I had to google "how to do bladder installations" after my first failed attempt, and thats how I found this site!
Im not as good at it tho, Im sure it;ll take a while to get the knack of it. I still feel very uncoordinated and have to do it on the bed, with a mirror and use alot of anaesthetic gel, I find it very uncomfortable (obviously)
look forward to reading more about you all!
Rebecca
I am new to this forum and have IC for years and years ( since a teen, I think, if not before. ALWAYS had bladder issues) I was diagnosed in March 2008.
Since then I have had 2 hydrodistentions done, the last being in OCt 2010, which did not work. I got NO releif at all and was very disappointed.
My urologist has recommended home installations...
My first attempt was on Wed night....It took 3 catheters but I finally did it, although when I took the syringe off the end of the catheta, all the med came back out. ( I now know to leave the syringe attached and remove the catheta and syringe together!)
My second attempt was last night, and I finally got the medicine in! I am using heparin, lignocaine and water which i mix in a 50ml syringe (it makes about 20ml)
My Dr said to leave it in about 15-30mins. I left it in longer as i didnt feel the need to pee, is it better to leave it in longer? Does it work better?
I have been told to do this twice a week for 4 months but see my dr again in 1 month.
I still cant beleive I have to do this to myself, I felt really sad about it after I did it. But, anything is better than living with this pain.
I dont know anyone who has this condition, so this forum has been very helpful to know I am not alone. Most of you are American? Im from Australia.
Its just so awful to be in pain all day every day, every single time I go to the loo..no-one really understands what its like.
Hoping to meet you all and wanted to say that louanne, your step by step guide to installations really helped! thank you
I had to google "how to do bladder installations" after my first failed attempt, and thats how I found this site!
Im not as good at it tho, Im sure it;ll take a while to get the knack of it. I still feel very uncoordinated and have to do it on the bed, with a mirror and use alot of anaesthetic gel, I find it very uncomfortable (obviously)
look forward to reading more about you all!
Rebecca
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