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  • Self instills

    Hi Ladies ... I don't know where to put this ? but here it goes is anyone on Pyridium all the time? I have been having such a hard time with the instills burning and not giving me any relief that I went ahead and took a pyiridium pill 200mg and it seems to sooth my bladder and when I went ahead a catheterized it did not seem to sting as much? does this make sense? so my question is would it be OK to be on pyridum all the time?

  • #2
    The Azo package and most Dr's tell you not to take pyridium all the time. I find after a couple of day taking it I get a terrible headache. If you are seeing a urologist you might want to ask about one of the other meds that are similar to pyridium. Like uta or urelle, there are quite a few, some they discontinue and then it is called something else. Anyway, they are the one's that make your urine blue and help with the burning as well. Or just ask your Dr if it is ok if you take the pyridium full time, it isn't a question we can really answer, best to ask your Dr.

    Good luck,
    Link to the patient information, everything from What is IC? to Disability

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom


    • #3
      Hi, Ruth ~ I'm so sorry you're having problems now....I think you were doing well for quite a while if I'm correct.

      My doctor has given me Pyridium with the instructions 3xDay and not to worry about any side effects, that it would be safe. I'm still cautious and now take only as needed, but never had any problems for the months that I took it other than nausea if I didn't eat before taking it.

      This is such a controversial issue and the docs all seem to have different opinions.

      Prayers that you find the "cause" for the burning....(could it be a UTI or maybe you've developed a sensitivity to your meds)....and hopefully you'll get it under control soon.

      How has life been for you otherwise? Think of you often.
      Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

      11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
      8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
      8/2010 Surg gallbladder
      TREATMENTS (updated 4/15)
      IC Diet since 8/2009 (Able to vary 4/15)
      Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
      Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
      Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
      *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
      Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
      PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret


      • #4
        My urologist...

        ...says it's safe to take as needed, whenever needed, until the end of time. Weird.
        Exposure to an unclean hot tub 2-17-07 FIRST UTI
        (Got ringworm-like sores from it before)
        (Someone else got what looked like 'eye herpes')
        (My husband got an ear infection. We were all just sitting there!)
        SYMPTOMS: Severe Urgency/Frequency for 18 months, food sensitivity, widespread nerve pains (random and everywhere), deep bladder pain that developed into flares at 4 months. Completely unreasonable diet sensitivity.
        TESTS: Nothing showed in urine cultures, CT scan, Cystoscopy, Lumbar puncture, back and brain MRIs, EMG tests.
        Hydrodistension Surgery/Biopsy showed minor glomerulations, inflammatory and mast cells, and a rare eosinophil. Blood tests show elevated ANA.
        CONFUSED: My hands and feet started falling asleep. I got twitching nerves or muscles everywhere. I started having concentration and memory problems, vision problems, then fatigue and chronic migraines. Fibromyalgia diagnosed, SSDI disability awarded at 4 years, then gone at 7 years. Won the appeal. IBS and esophagus spasms at 6 years.
        MEDICATIONS: Marcaine/Heparin/Sodium Bicarb instills, Lyrica, Nortriptyline, Uribel. Paxil and Trazadone from before. Painkillers as needed. Supplements include CystoProtek, DH Aloe, Colostrum.
        PREVIOUS CONDITIONS: Sudden onset of double vision, Paxil Discontinuation Syndrome, PTSD