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  • #1

    Trigger point injections

    In a consult to another specialist, my urologist wrote that I'd be getting trigger point injections.

    I read up on them after he said that, and from what I read places like here, I understood that after poking and prodding around, the most sensitive spots were identified (bladder? pelvic floor?) and then something was injected into those spots. I think of 'injections' as needles - I haven't seen any needles or specific-spot targeting with anything, on my body, that I'm aware of. But today when I asked the urologist, he said that the instillations I've been getting have been trigger point injections. Now I'm really confused.

    I get two kinds of instillations - the heparin/lidocaine/sodium bicarbonate ones ('rescue cocktail'), and the Uracyst. But they just get put in the bladder with the catheter.

    Can anyone help clarify, based on their own experiences? How can the instillations I've been getting be trigger point injections?
    ______
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per
    Tags: trigger point injections
  • #2
    I think it's just difference in how different people describe treatments. At leat now you know what he means.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

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    • #3
      instillations

      I just had an instillation on Wednesday, and was thinking I would feel better after as I had the many times before. Unfortunately I couldn't have been more wrong. I walked away with a leaking bladder and was worse for the wear. Normally they are quite helpful. My uro uses a marx/lydocaine combo. And nothing more. The cath was too big, and they used lydo to numb at insertion which usually helps because I am overly sensitive. I numbed late, and then too much. Ahh well. Now I can't empty at all. I am scheduled for botox in less than two weeks.

      I go back again for another rescue next week. And wish everyone luck with they healthy bladder quests.

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      • #4
        I have not had trigger point injections for IC but I have had them in my hip joint.

        My injection has to be done in the hospital under Fluroscope. A 25g spinal needle is inserted in the groin next to the femoral artery. It is then guided into the hip joint and the steroid cocktail is injected at the "spot" of injury.
        TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
        My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
        Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
        Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
        I post to encourage and offer total support for rescue instillations.
        Find me on facebook: L. Clark Thomas
        Louann

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        • #5
          I have had injections for my pfd that were injected into my vaginal wall. I can promise you that if you have had that type of injection you would remember them.

          L Thomas, what you are describing sounds like my previous uro told me about getting a type of nerve block, a ganglion impar......can't recall the rest, but he did tell me it had to be done by a anesthesiologist. I thought he called it a nerve block.

          Interesting that all these Drs use different terminology.
          Link to the patient information, everything from What is IC? to Disability
          http://www.ic-network.com/patientlinks.html

          American Urological Association Clinical Guideline
          Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
          http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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