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Has anyone had one of these? How was it? Like it, not like it?
I was told these last longer than the lidocaine ones. *shrug*
I was told these last longer than the lidocaine ones. *shrug*
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Live Well
Love Much
Laugh Often!
Diagnosed:
Dec 2005
Diagnosis:
IC
Cysto/Hydro:
Dec 2005
Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started).
Other Meds:
Skelaxin (as needed)
Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching), -
I do them twice a day most days, with heparin and sterile water added. They help a lot. They do last longer for me than the lidocaine ones and they burn less than the lidocaine ones did.
Most people don't need twice a day instillations, but my IC is not mild, and I have a job where frequency of restroom trips is a problem. These instillations have saved my career, which I love.
Hope you find relief soon,Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Thank you, gosh I hope they work!
Live Well
Love Much
Laugh Often!
Diagnosed:
Dec 2005
Diagnosis:
IC
Cysto/Hydro:
Dec 2005
Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started).
Other Meds:
Skelaxin (as needed)
Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),Comment
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It took me a bit to find the right one, but the one I do helps. I do mine daily. Mine consists of Marcaine 0.5%, Solu-Cortef (hydrocortisone, a steroid), Heparin 20,000 units, and sodium bicarbonate. I love having this solution in my bladder anymore. It feels great in there, and has helped my pain. I have to do them daily, since my IC has become more severe. I do believe they help, and are a part of my pain management regimen. It may take a bit. I could not tolerate ones with lidocaine in them and found out that caused bad urinary retention for me. Every one is different, and you learn a bit from doing them. I am very happy with the one I am currently on. Good luck to you.
Erin24 year old Ph.D student in Organic Chemistry
Loves to listen to music, play with my animals (cat, fish, 2 hamsters), and live life to the fullest each and every day.
My blog (just started):
http://imaginenoworries.blogspot.com/
Medications:
Elavil 25mg (helped with nighttime urination-used to be 7 or more times a night, now just once)
Cymbalta 60mg
Gabapentin (Neurontin) (3200mg/day)
Zyrtec 10mg
Xanax 0.5mg up to 3 times a day(spasms, anxiety)
Uribel
Macrobid 100mg (only on days when doing an instill)
Albuterol
Yaz Birth Control (3 months on birth control, then period)
Pelvic floor therapy
Valium 5 mg (inserted vaginally)
MScontin 30 mg (3 times a day)
Percocet 10/325mg (every 6 hours)
TENS Therapy, CVS machine, 30 minutes once or twice a day
Sanctura XR 60 mg (to help control severe bladder spasms that are causing urinary retention episodes and enable normal bladder sensations)
*** 1/4 of a teaspoon of baking soda in an 8 ounce glass of water up to 4 times a day*****
Instill:
Currently doing hyaluronic acid instillations (cystistat-6 instillations, once a week, already had 4...not sure if helping)
Used to do these:
Solu-Cortef (act-o-vial) 100 mg: 2 mL
Marcaine (bupivicaine) 0.5 % 25 mL
20,000 units Heparin
3 mL sodium bicarbonate
Diagnoses: Moderate IC, scoliosis, asthma, ovarian cysts, PFD, IBS, Fibromyalgia, vulvodynia, Fowler's syndrome (mild) 'Central Sensitivity Syndrome.'Comment
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Thank you, I sure hope I find one that works really soon. I really need some sleep.Live Well
Love Much
Laugh Often!
Diagnosed:
Dec 2005
Diagnosis:
IC
Cysto/Hydro:
Dec 2005
Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started).
Other Meds:
Skelaxin (as needed)
Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),Comment
Comment