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Elmiron Instills..... ?

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  • Elmiron Instills..... ?

    I am considering elmiron instills and was wondering if they were very effectiv, and most certainly how they felt and if they lasted long, as in less need for them in time.

    It would be a great help to find out.

    Thanks
    Live Well
    Love Much
    Laugh Often!




    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

  • #2
    I did them without much success. I used Marcaine, Kenalog, Sodium Bicarb, and 2 Elmiron caps. It numbed my bladder for 2 hours but I had a lot of burning the next day so I stopped. I did about 8 treatments.



    Suzanne

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    • #3
      During the heparine shortage Dr. Dell substituted Elmiron in my instills. After using them for a couple of months I felt my symptoms had returned and felt that lidocaine instills would probably do as much as the ones with Elmiron. He said there were several that felt the same way. It is like any of the treatments..there is no "silver bullet". You just have to figure out what works for you. Although Elmiron did not help me there are far more poster who do think Elmiron did help.
      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
      I post to encourage and offer total support for rescue instillations.
      Find me on facebook: L. Clark Thomas
      Louann

      Comment


      • #4
        Thank you for the information. I kind wondered if it was a waist of time... :/
        Live Well
        Love Much
        Laugh Often!




        Diagnosed:
        Dec 2005
        Diagnosis:
        IC
        Cysto/Hydro:
        Dec 2005
        Other Conditions:
        Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
        Meds for IC:
        Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
        Alternative Treatments
        Physical therapy for 8 weeks, Acupuncture (just started).
        Other Meds:
        Skelaxin (as needed)
        Didn't work:
        Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
        Tried:
        Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

        Comment


        • #5
          elmiron instills

          I do 2x weekly 3 elmiron capsules, 4 cc water, 3 cc sodium bicarb and 8 cc lidocaine. It has worked for me better than anything else. If I do flare, it is not as bad. The drawback is the risk of infection of course. Peeing the concoction out hurts as well, but can be managed with meds and perhaps peridium (I don't take it periduim any longer, it seems to actually cause more pain once it wears off now).

          If it works, it is worth it - I have tried to choose the least invasive method to treatment as I have multiple med allergies and adverse reactions and instills seemed like the best option.

          Natalie

          Comment


          • #6
            every icer is different what works for one might not work for someone else.
            <center>
            <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
            </center>

            Comment


            • #7
              Thank you for the infomation nat13, I appreciate it.

              And thank you Linda May, that is so so true.
              Live Well
              Love Much
              Laugh Often!




              Diagnosed:
              Dec 2005
              Diagnosis:
              IC
              Cysto/Hydro:
              Dec 2005
              Other Conditions:
              Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
              Meds for IC:
              Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
              Alternative Treatments
              Physical therapy for 8 weeks, Acupuncture (just started).
              Other Meds:
              Skelaxin (as needed)
              Didn't work:
              Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
              Tried:
              Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

              Comment

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