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I am considering elmiron instills and was wondering if they were very effectiv, and most certainly how they felt and if they lasted long, as in less need for them in time.
It would be a great help to find out.
Thanks
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Diagnosed:
Dec 2005 Diagnosis:
IC Cysto/Hydro:
Dec 2005 Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed. Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started). Other Meds:
Skelaxin (as needed) Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore. Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
I did them without much success. I used Marcaine, Kenalog, Sodium Bicarb, and 2 Elmiron caps. It numbed my bladder for 2 hours but I had a lot of burning the next day so I stopped. I did about 8 treatments.
During the heparine shortage Dr. Dell substituted Elmiron in my instills. After using them for a couple of months I felt my symptoms had returned and felt that lidocaine instills would probably do as much as the ones with Elmiron. He said there were several that felt the same way. It is like any of the treatments..there is no "silver bullet". You just have to figure out what works for you. Although Elmiron did not help me there are far more poster who do think Elmiron did help.
TREATMENT: PRN lidocaine/heparin Home Instillations since 2004 My Helpful Hints for Home Instillation:http://www.ic-network.com/forum/show...985#post309985 Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
Find me on facebook: L. Clark Thomas
Louann
Thank you for the information. I kind wondered if it was a waist of time... :/
Live Well
Love Much
Laugh Often!
Diagnosed:
Dec 2005 Diagnosis:
IC Cysto/Hydro:
Dec 2005 Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed. Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started). Other Meds:
Skelaxin (as needed) Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore. Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
I do 2x weekly 3 elmiron capsules, 4 cc water, 3 cc sodium bicarb and 8 cc lidocaine. It has worked for me better than anything else. If I do flare, it is not as bad. The drawback is the risk of infection of course. Peeing the concoction out hurts as well, but can be managed with meds and perhaps peridium (I don't take it periduim any longer, it seems to actually cause more pain once it wears off now).
If it works, it is worth it - I have tried to choose the least invasive method to treatment as I have multiple med allergies and adverse reactions and instills seemed like the best option.
Thank you for the infomation nat13, I appreciate it.
And thank you Linda May, that is so so true.
Live Well
Love Much
Laugh Often!
Diagnosed:
Dec 2005 Diagnosis:
IC Cysto/Hydro:
Dec 2005 Other Conditions:
Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy Meds for IC:
Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed. Alternative Treatments
Physical therapy for 8 weeks, Acupuncture (just started). Other Meds:
Skelaxin (as needed) Didn't work:
Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore. Tried:
Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
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