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Are instillations Traumatic to bladder?

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  • Are instillations Traumatic to bladder?

    I am in so much pain. The trauma of kidney stones caused this disease. Earlier this year a had a hydro and that was more trauma than the kidney stones and caused even more damage. I am just getting worse every day. After anything that involves trauma to my bladder more damage occurs. I need to know what kind of trauma will be involved with instillations? Is there any recipe that would be less traumatic? I can't take any additional damage and pain. Any ideas on this would be a great help.

    Thanks for your ideas and help

    val

  • #2
    I have heard that sometimes the DMSO instills can be uncomfortable but I can't personally say because I've only had the rescue instillations. They use lidocaine in them to numb up the bladder and also sodium barb, distilled water and Elmiron. The only discomfort I've ever had from them is just a bit when pulling the catheter out and then for about a day there is some burning from local irritation to the urethra. Other than that though, in the bladder itself, I've had no pain from the instillations at all and I do think they are helping.

    Good luck. I hope you find a recipe that works for you!
    Diagnosed with IC in April 2011. Medications and IC treatments did not help, diagnosed with PFD in September of 2013. Still searching for answers as to why I have never-ending frequency/urgency issues.

    Current medications/treatments:
    Pelvic physical therapy, valium suppositories, b and o suppositories, acupuncture, probiotics, magnesium, epsom salt baths

    Previous medications/treatments:
    Elmiron, Hydroxizine, Elavil, VESIcare, Series of rescue instillations using Elmiron, water, lidocaine, & sodium bicarb and self-cathing with instills as needed, D-mannose, Glucosamine, Hyophen (generic Prosed), Colostrum, IC diet, PTNS, chiropractic treatments, Desert Harvest Aloe Vera, CystoProtek

    Comment


    • #3
      I've had DMSO instillations years ago and will never have them again. I don't feel that they helped me at all. Also, I had to hold it in for 1 hr which was extremely uncomfortable. I 've also heard later that you can get a chemical burn inside the bladder from these instillations. I definitely will never have them done again!
      Diagnosed in July 2003

      Meds and supplements:

      Desert Harvest Aloe Vera
      Prelief as needed
      Megafood multi
      Fish oil (Nordic naturals)
      Probiotic (Mega food mega flora brand)
      Vitamin D (Carlson's solar gems 4000 IU)




      Favorite Quote:

      "Dance as if no one were watching, sing as if no one were listening, and live every day as if it were your last."

      Comment


      • #4
        every icer is different I have the DMSO instills and so far they work great for me. others have the rescue instills so it is hard to say what instill will work for you. I know it took about 3 or 4 instills till I got relief. this desease is not caused buy kidney stones that is the problem the doctors are baffled. children, men women all ages all races get this horrible desease. the best thing you can do is stay on the ic diet and educate your self as much as possible about this desease. sooner or later you and your uro will find the right treatment plan. we all know what you are going through and this is an excelllent sight to get info and understanding. I will pray that you find relief soon, keep in touch and let us know how things work out for you.
        <center>
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        • #5
          Most do say DMSO instills are painful. Some who do rescue instillations find they do have spasms. Most do not have problems with the rescue instillations. The catheter seems to be ther source of much discomfort and spasms for some. Many who do have problems find the instillations are worth the discomfort.

          Dr. Dell, based on IC patients he sees, is beginning to think that IC may be a genetic disease that manifest after a bladder trauma. That being said the kidney stones did not "cause" IC but the trauma caused to the bladder may be the source.

          I have what is called rapid onset of IC that started about 4 months after extensive pelvic surgery. There is long term research being conducted by the Deparment of Health concerning rapid onset of IC after trauma to the bladder.
          TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
          My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

          Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
          Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
          I post to encourage and offer total support for rescue instillations.
          Find me on facebook: L. Clark Thomas
          Louann

          Comment


          • #6
            Thanks guys,

            I will not be having any DMSO. I agree that the kidney stones did not cause IC but the trauma of them caused this to happen to me. I am in agony. The IC diet is not any help. I am in pain with in a few minutes after I wake up and the pain just gets stronger as the day goes on. Any thing I ingest, even meds like hydroxyzine, spike the pain up further. I am osteopenic now due to malnutrition and the pain in both of my legs is almost as bad as my bladder pain. Thank you so much for responding and letting me know about DMSO. I don't think instillations are going to be a big difference but I will try. Thanks again.

            Comment


            • #7
              valerie, I am so sorry you're in such pain. If you end up getting the rescue instillations, I really hope they help you. I know some people have had some immediate relief after the first one but it took 3 before I started feeling better and it wasn't until after the 4th one that I could really tell a difference but I'm glad I stuck with them because they are definitely helping. Best of luck.
              Diagnosed with IC in April 2011. Medications and IC treatments did not help, diagnosed with PFD in September of 2013. Still searching for answers as to why I have never-ending frequency/urgency issues.

              Current medications/treatments:
              Pelvic physical therapy, valium suppositories, b and o suppositories, acupuncture, probiotics, magnesium, epsom salt baths

              Previous medications/treatments:
              Elmiron, Hydroxizine, Elavil, VESIcare, Series of rescue instillations using Elmiron, water, lidocaine, & sodium bicarb and self-cathing with instills as needed, D-mannose, Glucosamine, Hyophen (generic Prosed), Colostrum, IC diet, PTNS, chiropractic treatments, Desert Harvest Aloe Vera, CystoProtek

              Comment


              • #8
                I hope the rescue instillation will help. I too am so sorry you are in so much pain.
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

                Comment

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