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Are instillations Traumatic to bladder?

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  • L. Thomas
    replied
    I hope the rescue instillation will help. I too am so sorry you are in so much pain.

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  • phoenixgirl
    replied
    valerie, I am so sorry you're in such pain. If you end up getting the rescue instillations, I really hope they help you. I know some people have had some immediate relief after the first one but it took 3 before I started feeling better and it wasn't until after the 4th one that I could really tell a difference but I'm glad I stuck with them because they are definitely helping. Best of luck.

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  • valerie michele
    replied
    Thanks guys,

    I will not be having any DMSO. I agree that the kidney stones did not cause IC but the trauma of them caused this to happen to me. I am in agony. The IC diet is not any help. I am in pain with in a few minutes after I wake up and the pain just gets stronger as the day goes on. Any thing I ingest, even meds like hydroxyzine, spike the pain up further. I am osteopenic now due to malnutrition and the pain in both of my legs is almost as bad as my bladder pain. Thank you so much for responding and letting me know about DMSO. I don't think instillations are going to be a big difference but I will try. Thanks again.

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  • L. Thomas
    replied
    Most do say DMSO instills are painful. Some who do rescue instillations find they do have spasms. Most do not have problems with the rescue instillations. The catheter seems to be ther source of much discomfort and spasms for some. Many who do have problems find the instillations are worth the discomfort.

    Dr. Dell, based on IC patients he sees, is beginning to think that IC may be a genetic disease that manifest after a bladder trauma. That being said the kidney stones did not "cause" IC but the trauma caused to the bladder may be the source.

    I have what is called rapid onset of IC that started about 4 months after extensive pelvic surgery. There is long term research being conducted by the Deparment of Health concerning rapid onset of IC after trauma to the bladder.

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  • Linda May
    replied
    every icer is different I have the DMSO instills and so far they work great for me. others have the rescue instills so it is hard to say what instill will work for you. I know it took about 3 or 4 instills till I got relief. this desease is not caused buy kidney stones that is the problem the doctors are baffled. children, men women all ages all races get this horrible desease. the best thing you can do is stay on the ic diet and educate your self as much as possible about this desease. sooner or later you and your uro will find the right treatment plan. we all know what you are going through and this is an excelllent sight to get info and understanding. I will pray that you find relief soon, keep in touch and let us know how things work out for you.

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  • jacque
    replied
    I've had DMSO instillations years ago and will never have them again. I don't feel that they helped me at all. Also, I had to hold it in for 1 hr which was extremely uncomfortable. I 've also heard later that you can get a chemical burn inside the bladder from these instillations. I definitely will never have them done again!

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  • phoenixgirl
    replied
    I have heard that sometimes the DMSO instills can be uncomfortable but I can't personally say because I've only had the rescue instillations. They use lidocaine in them to numb up the bladder and also sodium barb, distilled water and Elmiron. The only discomfort I've ever had from them is just a bit when pulling the catheter out and then for about a day there is some burning from local irritation to the urethra. Other than that though, in the bladder itself, I've had no pain from the instillations at all and I do think they are helping.

    Good luck. I hope you find a recipe that works for you!

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  • valerie michele
    started a topic Are instillations Traumatic to bladder?

    Are instillations Traumatic to bladder?

    I am in so much pain. The trauma of kidney stones caused this disease. Earlier this year a had a hydro and that was more trauma than the kidney stones and caused even more damage. I am just getting worse every day. After anything that involves trauma to my bladder more damage occurs. I need to know what kind of trauma will be involved with instillations? Is there any recipe that would be less traumatic? I can't take any additional damage and pain. Any ideas on this would be a great help.

    Thanks for your ideas and help

    val
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