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I have been having a sudden increase in symptoms, perhaps due to allergies (diet has not changed), and would like to get an instillation done before I go on vacation next Wednesday. I have heard that some peoples symptoms increase after instillations and was trying to get a ballpark estimate of how long the increase tends to last. Any ideas, folks?
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It could depend on what's in the mixture. Some find that marcaine or lidocaine helps very quickly, but there could be some irritation from the catheter. If you decide to do this, I suggest you go in as soon as possible so you have a few days before vacation. Have you talked to your doctor? It could be that an antispasmodic, such as hyoscyamine, might give you some relief.
DonnaStay safe
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I always appreciate your speedy replies, Donna. I take uribel, which has an anti-spasmodic in it, it's like prosed or urelle. I'm scheduled for my first instillation on Thursday and my trip is next weekend. Thanks for all your help!Comment
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I usually have increased frequency, as well as some burning (irritation from the catheter) the same day I get the rescue instill. Sometimes it's only for a few hours but I've had it the next day a couple of times, too, mostly in the morning. It's not bad though and usually goes away pretty quickly. You should be fine over the weekend. Have fun on your trip!Diagnosed with IC in April 2011. Medications and IC treatments did not help, diagnosed with PFD in September of 2013. Still searching for answers as to why I have never-ending frequency/urgency issues.
Current medications/treatments:
Pelvic physical therapy, valium suppositories, b and o suppositories, acupuncture, probiotics, magnesium, epsom salt baths
Previous medications/treatments:
Elmiron, Hydroxizine, Elavil, VESIcare, Series of rescue instillations using Elmiron, water, lidocaine, & sodium bicarb and self-cathing with instills as needed, D-mannose, Glucosamine, Hyophen (generic Prosed), Colostrum, IC diet, PTNS, chiropractic treatments, Desert Harvest Aloe Vera, CystoProtekComment
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I had a rescue instill today, Elmiron, lidocaine and some other med (forgot already), I had urinated 22 times before seeing my uro this morning, once I had the instill which was around noon I've only had to urinate twice- what a relief.IC diagnosis 3 weeks ago.
Vesicare 10 mg once daily
IBS and Gerd-Zegerid
IC diet
Elmiron 100 mg three daily
Hydroxyzine 25 mg at night
Amitriptyline 10mg at night
Diovan 60/12.5 daily
Topral 50 mg daily
Zoloft 100 mg at night
Klonopin .5 twice dailyComment
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So glad you found relief! I felt great with the instill in, once I voided I had a little bit of frequency until this afternoon but am now feeling better. Thank you all for your support!Comment
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Sounds like you are having some positive effects of the instills.
Hopefully they will continue to help. Some find it does take a period of adjustment. Others have found the ingredients may need a little "twiking".
TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
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LouannComment
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jawein02, I am so glad you posted this. I am actually in a very similar situation. I have my first rescue instill next week and I am leaving on vacation the following Wednesday. I'm worried about how long it will take to recover and I'm hoping this really bad flare will calm by my trip. So, glad to hear that the instill helped you. I'm hoping the same happens with me.Diagnosed IC 2/2011
Current treatments/medications:
Physical Therapy for Pelvic Floor Dysfunction
IC diet
Claritin
Flonase
Elmiron (200 mg twice daily)
Uribel
Valium 5 mg
Zoloft 25 mg
Tylenol 500 mg (as need for pain)
I love being a mom to an awesome active toddler
4/09 9/09Comment
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