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  • phoenixgirl
    replied
    As purpleviolet said, it costs around $600. I've seen some people say that their insurance will cover it but mine will not. The way I understand it, you pay the compounding pharmacy and then they send the ingredients to your doctor's office so they can do the instillations. I asked my uro about it and she said that she's heard reports that it's worked for some but she treats a large number of IC patients and she said that in her practice, she's not seen anyone yet that's responded better to it than how they'd do with an Elmiron rescue instillation.

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  • purpleviolet
    replied
    other posts

    There are other posts about this on this forum just maybe under other sections. I tried it and it did not work but maybe for others it does. Good luck. It cost me $600.

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  • fmcbride
    started a topic Gaba-ic

    Gaba-ic

    I recently received a email regarding this product from IC Network,( I think).

    It is supposedly a compond of FDA approved ingredients that is used as an instillation for IC. They used the term Off-Label RX to describe it. Since this is a combination of FDA approved drugs & prescribed by a doctor I doubt it would be as expensive as the Elmiron which has no generic for it. The information advised your uro could do these instills in office or you could self treat at home.
    Does anyone know anything about this new idea? I suppose it is a replacement for Elmiron.
    I am interested.
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