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Instillations - PLEASE HELP

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  • #16
    I have been doing home instillations for several years now. I learned at Dr. Dell's. He teaches instillations in 3 lessons. I have a link in my signature that explains the steps I use for instillations. The 3rd lesson I did an instillation from start to finish in his office. I was completely confident after that lesson.

    There is no way you could be more apprehensive than me about doing home instillations. There are 1000's that do home instillations. Your MD should give you instructions and you should be able to contact the office if you have problems. Dr. Dell told me not to hesitate to call his office with any questions. He also said not to worry that I could come back to the office any time if I needed help with anything. That also reassured me that I would be able to do the instills at home.

    I think you will be fine learning how to do the instills at home. If you have any questions I will be happy to share my experiences with you. I check the board frequently and try to post to new threads.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas
    Louann

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    • #17
      I too learnt to self cath this week.

      It was time, I have retention, and I have been in total retention quite a few times over the summer, each time I have just gone to my own clinic, they know me well there, and I get looked after quickly, they may not understand IC at all but listen to anythig my Dr tells the nurse as to how he wants things done, not the way their protocol requires.

      The last time I was in total retention I was in the city, and had to go to a big ER, this was a very trying expirence, they knew nothing about IC, so figured if I had only gone 4 hours without peeing there was no need to hurry anything, I could wait in the waiting room for hours.

      Anyways after that I wanted to at least be able to self cath in emergencies, I never want to be in this position again. At the sametime my uro had sent a letter to my GP that he wants me self cathing 2x's per day. So it was time to learn.

      I went in for a lesson this week, it was a crowed small room. There was the teaching nurse, a student NP there who wanted to sit in, my husband came to learn too, as he knows if I am in total retention, I quite likely will be in too much pain to do it myself.

      I came home with a quite irritated bladder, with a lot of urgency, the nurse teaching was very good, but dosen't know anything about IC, VV, or too much about retention, and that these conditions cause things in this area to much more sensative.

      By the next day my bladder felt much better.

      I also was due for a pap test so I had this done at the sametime.

      I have not tried it on my own yet, but I am comfedient I will be able to do this myself, I just need to gather the things to do it at home and get an RX for the supplies.

      The nurse also said mine was the only partner she had ever had come into learn as well, felt he was very progressive, in his views. It was his idea not mine, but I am glad he did so he can do it if I need him too.

      MG
      My are with you all. May you all find a way to peace and joy in your lives.

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      • #18
        Rescue instill ?

        Hello. Thanks to all for your advice re. My first rescue instillation. I just had my 4th (weekly) treatment. I had about 24 hrs of discomfort (not pain) with the first. After the second and third it got better (closer to 12 hrs/end of the day). Yesterday was #4. The procedure itself is going better (I originally had a hard time relaxing;the Valium suppositories seemed to help). I live close so the drive is not too bad either, although I clearly see the benefits of doing it at home if you/the patient is comfortable with the procedure. (I am not there yet.) MY PROBLEM IS-a after the fourth procedure I was VERY uncomfortable all night and so far today. (Burning urethra;general discomfort in the area due to burning...it is still present 25 hrs later but getting better). Is this typical? Has anyone else experienced this? Also I just felt sick to my stomach last night which is atypical for me. Has anyone has adverse reactions to this treatment? I have no desire to stop. My nurse has been great and she does put lidocaine gel in the catheter. It just seemed odd to get better then worse. Any thoughts? Thanks to all..

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        • #19
          There is no pattern. Some people have great success and have little or no pain.ever.. Some have had your experience and it settles down in a month or so. Some start then have to stop instills, then months later start them again without the problem. Then there are also some that just have to stop.
          TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
          My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

          Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
          Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
          I post to encourage and offer total support for rescue instillations.
          Find me on facebook: L. Clark Thomas
          Louann

          Comment

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