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HEPO-LIDO----http://imprimispharma.com/social-media-policy/

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  • HEPO-LIDO----http://imprimispharma.com/social-media-policy/

    I have been taking these bladder installations over a year from Dr Parsons .im a male patient .so yes males get this yucky disease get frequent Utis,frequent prostate infections, anxiety,ED LOL, ibs symptoms with Extreme pain.have been to over 12 UROLOGIST the best I found was Dr Parsons San Diego Ca. He has been wonderful in the developments of MEDS. Take elmiron , antibiotics when I get Utis etc. but I tried DMSO , THE MIXING LIDOCAINE,HEPERIN AND SODIUM BICARBONATE.BEFORE .NOW JUST GOT RELEASED I HAVE BEEN GETTING THE COMPOUND MED FROM PJS RX IN SAN CA,BEFORE. NOW IF YOU HAVE COMPONDED MEDICAL INSURANCE YOU CAN GET A SCRIPT FOR THE MIXTURE ALL SET UP CALLED THE HEPO-LIDO ALL SELF READY TO GO . THE PRELUBED SPEEDY CATH PEDIATRIC CATHETER TO INSERTEASY . THEY COME IN ALL READY SYRINGES 30 ml READY TO USE .I REFRIGERATE.THE COLD MEDICINE FEELS BETTER ON MY SORE BLADDER. I DO ANYWHERE FROM 2--4 ADAY AT home.instead of the Drs office .THE nurse at DR PARSONS taught me how to do them.I was scared at first in the beginning.but now I'm ok to do them . I use gloves iodine alcohol before touching anything.TO MAKE SURE NO INFECTIONS.WITH THE TREATMENTS THIS HAS BEEN THE BEST BLADDER RELIEF INSTALLATION I HAVE FOUND.NOT PERFECT but I was in bed 24/7 over a year.I have chronic pain and chronic Ic. I believe it started when I was 18. I think when I got a hernia surgery that triggered the IC . THEN THINGS progressed . I thought for sure I was going to lose my mind from the pain. But now with the pain management Dr ,I take 20 mg OxyContin 3 a day ,Hydrocodone, and watch the diet.and these new treatments.MY IC HAS NOT PROGRESSED BUT NOW IS HEALING BETTER . THE ONLY BAD THINGS ARE THE COPAYMENTS . OF THE MEDS.IM LUCKY TO HAVE GOOD INSURANCE. BUT IF PATIENTS HAVE MEDICARE, MEDICAID, THEY SHOULD BE COVERED. I PRAY SOME DAY I CAN GO BACK TO WORK. BUT IT TOOK ME 4 YEARS 4 DRS TO FIGHT TO GET SSDI . IT IS HARD TO WORK WITH CHRONIC PAIN, DOING BLADDER INSTALLATIONS, MEDS DRS VISITS EVERYDAY. NOT SLEEPING CORRECT. BUT I USE TO GO TO THE BATHROOM ABOUT 42 TIMES A DAY NOW IM DOWN TO ABOUT 13 .SO THAT IS. Very good accomplished goal. Sorry to be long winded .but I was curious if any other patients are going to go to this combination by the compond
    http://imprimispharma.com/social-media-policy/
    Imprimispharma

    Just curious if any other patients our starting this new medicine combo from their Drs and if they are getting good results.I STILL GET SOME horrible Days but not 24/7 like before .Not perfect but in the right direction.. Thanks Joe

    Thanks at least we are getting IC AWARENESS IN THIS HORRIBLE DISEASE. But you must stay positive their are so many worse things then IC .
    THANKS FOR READING.I pray someday they find a cure for the disease.....

    http://imprimispharma.investorroom.c...titis-Symptoms
    Last edited by JL1961; 06-20-2015, 03:55 PM.

  • #2
    Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

    I haven't used the instills but wanted to thank you for providing the information here. It sounds like you've found something that is helping you, which is wonderful! I wrote down the information in case I ever need it in the future and I hope others here read your comments on the compounded pre mixed instills. It may be helpful to a lot of people here. I hope you continue to see improvement!

    Comment


    • #3
      Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

      Thanks I put a link on the bottom that explains it much better!!

      Comment


      • #4
        Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

        That is great to hear you are getting some relief! My daughter's urologist was just telling me that Imprimis's hepo lido is more effective and better then the rescue instills that they previously were using. Do you find this to be true also? Again, glad to hear you are feeling better! :-)
        Last edited by jvr; 06-20-2015, 06:05 PM.
        "Where there is hope there can be faith. Where there is faith, miracles can occur."

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        • #5
          Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

          What is the difference between the hepo-lido instillations versus the regular rescue instills that are made up of the same stuff?? I think it is awesome having them pre-made. Are they preservative free? I think that would be a downside if they are not preservative free. I know years back when I did the rescue instills I use to order my own lidocaine that was preservative free. I feel the less chemicals the better. Glad you are feeling better and getting some help!

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          • #6
            Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

            It is better not milky looking and it is HEPERIN BUFFERED POWDER . AND THE LIDOCAINE IS POWDER BUFFERED . TO LAST LONGER AND STRONGER MG PLUS IT WORKS QUICKER AND DOES NOT BURN WHEN YOU URINATE . PER THE DR . I LIKE IT THE BEST SO FAR . OUT OF ALL THE BLADDER INSTALLATIONS I HAVE DONE. I WOULD LOVE TO TRY BOTOX BUT INSURANCE WONT LET ME . EVERYTHING A FIGHT WITH THE INSURANCE TOO. THANKS
            Also they last 6 Months in the frig . And preserve free . Very convenient when you really need that treatments . I think they made them to help nurses who do not have time to mix. And patients but it is better working . They did a trial on the mixing ones yourself or the hipo-lido sets . Thanks hope this helps anyone . Everything we can get is a godsend..

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            • #7
              Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

              Yes it is much better and works quicker for pain .and you can hold the medicine in your bladder for about 45 mins .and it is easier to urinate it out. But we are all different wouldn't hurt to try. DR PARSONS HAS been playing around with COMPONDED medicine for 3 years . Buffering it he says makes it a much better instill . And I like them cold in the bladder feel relief in about 3 minutes . DMSO HURT BURNED SMELLED painful urinating it out. The HEPERIN sodium bicarbonate and lidocaine.helped but this seems to last longer and heals the bladder cause better HEPERIN . I'm just saying what the Dr told me and after doing them over a year. They have helped me stop the bladder getting worse. And helping me live more comfortable.it is not fun doing the treatments but 15 minutes for treatment is better then being stuck in bed . Not being able to do anything but suffer in pain. Thanks I'm happy just to be glad something helps when in a bad flare . I also think their our a lot of men who have IC ,AND BEING TREATED FOR PROSTATIITUS INSTEAD. SAME SYMPTOMS..JUST A THOUGHT I NO WHAT I WENT THRU . THE YEARS. ITS SAD WHEN I GO TO DRS AND THEY ASK ME ABOUT IC. THEN IM TOLD BOY YOU NO MORE THEN I DO ABOUT IC. I JUST LAUGH BECAUSE I LIVE IT 24/7 ....
              Last edited by JL1961; 06-21-2015, 08:06 AM.

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              • #8
                Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

                I have been using heparin/lidocaine instillations for almost 11 years. The instills totally control my IC.
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

                Comment


                • #9
                  Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

                  If you go into the Imprimis-RX website it explains the compounded instills. They are patented so there must be something different (maybe the exact mixture and maybe the fact it has the right amount of sodium bicarb). This is something Jill could have as an information advertised here for everyone. I'm mailing the information and RX website to my uro for her info. I always thought I could have used ice water instilled into my bladder at one time and this probably would have been very helpful since it can be refrigerated and would have felt really good.

                  Comment


                  • #10
                    Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

                    There are many people who are using Dr. Parsons' formula for instillations.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

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                    • #11
                      Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

                      The Imprimis website said it introduced it's patented compounded formula as of 2015 (Parson's) so it must be something newer than previous combos.

                      Comment


                      • #12
                        Re: HEPO-LIDO----http://imprimispharma.com/social-media-policy/

                        The people at Imprimis are so nice! I emailed them and they were so helpful and prompt in answering my questions. They were also going to contact our local urologist to see if they would be interested in carrying their instills. Our long distance urologist likes these instills a lot, so I hope the urologist here will try them out! It sounds like Dr. Parsons has come up with a good mix.
                        "Where there is hope there can be faith. Where there is faith, miracles can occur."

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