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  • Bleach treatments

    Need advice. Has any done the bleach solution treatment? Mine is tomorrow and just don't know what to expect. I've done dmso x 11 AND dmso cocktail x 6. Nothing is working. Thoughts?

  • #2
    Re: Bleach treatments

    Ever had a distention, works great for some. Bleach in the bladder, hmmmm...........Be anxious to hear. Best of luck with that.
    Have had symptoms since March 2010
    Have tried: Ditropan, Detrol, Aloe Vera, Uribel, Myrbetriq, Vesicare, others I can't remember
    Diagnosed Jan 2016, with cysto/hydro,(no hunners) worked great for 4 months, another hydro in July
    I just started drinking Aloe again and taking hemp oil which is getting great reviews!!
    25mg hydroxyzine before bed,
    25(was on 50) mg Elavil before bed, now on 400mg Elmiron, since about Sept.
    valium suppositories when needed
    Ambien before bed
    for a CURE,

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    • #3
      Re: Bleach treatments

      Bleach treatments??? There is no credible IC treatment focused on the use of bleach. It sounds like you have a doctor who thinks that they are trying to kill some sort of bacteria?? This sounds very very scary to me... and I would expect a LOT more information before agreeing to do it.

      If the doctor is considering clorpactin or silver nitrate, these are very OLD treatments that are NO LONGER used as a therapy for IC nor are they mentioned in the IC guidelines here in the USA. Why? Because they do more damage than good for the vast majority of patients who try them. Very VERY painful as well.
      Last edited by icnmgrjill; 08-10-2016, 11:56 AM.
      Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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      Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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      • #4
        Re: Bleach treatments

        Yes but they only work for about a month. I will let you know. Nervous

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        • #5
          Re: Bleach treatments

          Reading this i took a screen shot and will bring to my dr.

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          • #6
            Re: Bleach treatments

            I have to agree that the idea of anybody putting bleach into my bladder is very frightening.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

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            • #7
              Re: Bleach treatments

              That's the scariest thing I have ever heard. I would run like H*** from anyone who suggested this treatment to me.

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              • #8
                Re: Bleach treatments

                I have used lidocaine/heparin rescue instillation for about 10 years. They have been very successful. This is pretty much a standard rescue instillation.

                I personally would want to talk to my MD...does he use the standard lidocaine/heparin instillations.. side effects of the bleach instillation...what is the "bleach"...how long the treatment had been used...how effective is the treatment.. I have never heard of a bleach treatment. No one on the forum is familiar with the treatment. That would send up red flags for me. If you decide to do the instill please let us know how it turns out.

                There is an article on IC Network that gives describes some instillation therapys. It looks like it is an older treatment used during 1970's. To read the entire article use this url.
                http://www.ic-network.com/handbook/i...tml#Clorpactin

                This one could be the instillation you are talking about.
                Clorpactin:

                Clorpactin® (WCS-90) solutions are commonly used throughout the medical community as a lavage or wash that, at very low concentrations, can clean wounds, sinuses, and remove the necrotic debris from massive infections. During surgical procedures (i.e. appendix rupture), it is used as an irrigant because it kills bacteria, fungi, and some viruses. Recent research studies have shown that it also has effectiveness in the treatment of oral diseases, such as canker sores, gingivitis and periodontal disease.

                Yet, for the past twenty years, incorrect information abut Clorpactin has circulated throughout the IC community that it is "bleachlike" probably from the similarity of its name to chlorine or Clorox. It has also been used by some physicians at a painful dosage that is not recommended by the company or early research.

                Grannum Sant, MD and Dennis La Rock, in "Intravesical Therapies for Interstitial Cystitis" described the early use of Clorpactin® in the bladder. "The initial rationale for the use of Clorpactin in the 1950's was based on the similarity between the 'classic form' of interstitial cystitis with…tuberculosis of the bladder. Clorpactin® was used to treat bladder tuberculosis and this led to its use in interstitial cystitis based on the unsubstantiated belief that IC is caused by unidentified bacteria." Yet, even in those earliest days, pain was a consideration that the manufacturer took very seriously. Alfred Globus, CEO of United- Guardian, Inc., offered "When Clorpactin® was first used in the bladder for tuberculosis cystitis, it was done with a 0 .33% solution. However, we found that this concentration was too high because it caused profound pain. However, most patients could tolerate a 0.2% solution much more comfortably and still receive the same results after a series of 4-6 weekly instillations. Therefore, we've only recommended the 0.2% concentration for use in the bladder."

                Yet, during the 1970's, the treatment protocol for IC was dramatically changed when researchers in New Zealand began using a 0.4% solution as a single instillation in combination with a hydrodistention of the bladder, rather than doing weekly instillations at 0.2%. The New Zealand protocol was significantly more painful and also required general anesthesia. Not surprisingly, this new method & approach became popular in America where doctors at leading universities began using this "more efficient" method of delivery. Dr. Globus reiterated:

                "Our recommended course of treatment involved a series of office visits at 0.2% about four or five days apart, filling the bladder comfortably without over distention. In New Zealand, they deviated from this protocol by making it a single application at 0.4% with hydrodistention. It's not only the pain caused by the 0.4%, but also the act of stretching the bladder. We did not change our viewpoint. We knew that it was too painful to exceed 0.2% and we did not recommend that increase. The point is that when someone changed the technique on their own ( i.e. 0.4%) that hurt everyone. It's not just twice as difficult to tolerate, it's probably four times as painful. The square of the increase (two squared)."

                Why would it be done at the higher dose than at the lower dose? Some care providers would argue that it saved the cost of several office visits. Others would say that it was as equally effective as the lower dosage. We wonder, though, if the patient experience was disregarded. Would a patient agree to have a therapy that was very painful when a much less traumatic method of using the same medication was also available? Likely not. Dr. Globus continued "When I asked one doctor how his patients reacted to the 0.4%, he said that his patients had 'handled it.' I was surprised. Why do it at the high dose, when a lower dose can be just as effective and not as painful." Thus, the legitimate stories of excruciating procedures and pain became commonplace.
                Last edited by L. Thomas; 08-14-2016, 03:34 PM.
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

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                • #9
                  Re: Bleach treatments

                  If the solution is clorpactin, I have met one person who was treated with it. For her at least, it required an anesthetic in the hospital to have the solution instilled --- because it would have been too painful without being totally asleep.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Re: Bleach treatments

                    I still don't fully understand but it's a diluted chlorine mixture which I declined. We're continuing with DMSO cocktail biweekly. He also upped my ditropan dose. I start physical therapy next week with a pelvic floor specialist. Started yoga last night. Boy is that hard. Thanks for all of the information.

                    Comment


                    • #11
                      Re: Bleach treatments

                      Hello there. I am going to try a lidocaine and sodium bicarbonate instil this week and hopefully(if I can bear it!) for a few weeks afterwards. How long did it take for the lidocaine instil to start helping? I am male myself and UK based.

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                      • #12
                        Re: Bleach treatments

                        Are they including prednisone? Im on my 7th treatment and minimal results here yet. I will say the sharp stabbing pain is all but gone though. Good luck. The university of iowa is researching a cure. Prayers!!

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                        • #13
                          Re: Bleach treatments

                          Originally posted by aameike View Post
                          Are they including prednisone? Im on my 7th treatment and minimal results here yet. I will say the sharp stabbing pain is all but gone though. Good luck. The university of iowa is researching a cure. Prayers!!
                          I have asked about steroids being used to treat this inflammatory condition but it seems that its not something allowed due to NHS protocol and not being a researched treatment. I have responded well to steroidal injections to treat other urological conditions at a pain clinic so I will probably asked for a referral to one shortly if this treatment yields not positive outcome.
                          My doctor also told me that no research is being done in the UK as its considered a 'benign' condition(ridiculous of course) and a bladder resection is the only option otherwise. I refuse to accept this as I am not willing to do this as I am certain there is a solution. I am also optimistic about mesenchymal stem cell treatment but its years away from here in the UK.

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                          • #14
                            Re: Bleach treatments

                            I truly hope the instills work for you. Good luck

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                            • #15
                              Re: Bleach treatments

                              Originally posted by aameike View Post
                              I truly hope the instills work for you. Good luck
                              Thanks for your good wishes.
                              I will not be giving up any of my bladder until every avenue has been researched and tried and my current pain was actually as a result of the botox treatment,beforehand I had lots of frequency but no pain,now I have both.

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