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  • First Instillation...

    Is it typical to have a lot of bleeding after an instillation even if it was only lidocaine and elmiron in the solution?

    I'm ordering the regular instillation but on my last visit I did a rescue one just to get some idea what the regular therapy would be like. I was fine on the way home in fact I was able to avoid voiding for like three hours which is pretty good for me. But I realized when it felt a little uncomfortable I should void and then the effects of having had a catheter came into play so that was uncomfortable. I just don't know if the bleeding was only from the catheter irritating my urethra or if my bladder was bleeding for several hours afterwards?

    Also the new compounding for instillation is lidocaine and Hyaluronic acid. Does anyone have any experience with what happened to me above or with the new instillation medication?

  • #2
    Re: First Instillation...

    I haven't read that anyone has had a lot of bleeding. I have had a show of blood a couple of times in the time I have been doing instillations (more than 10 yrs) but never a flow of blood. I would consider that unusual and would make sure I called the MD.

    There are a number of post about instillations with Hyaluronic acid on the forum. My instillations are lidocaine and heparin.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas
    Louann

    Comment


    • #3
      Re: First Instillation...

      I suggest you telephone your doctor's office, especially if there is still blood in your urine. For one thing, an infection can build rapidly in the bladder and can cause the urine to look almost like pure blood --- which can be very scary.

      Sending well wishes,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Re: First Instillation...

        The blood went away the same day and did not return and I have not felt especially worse. I was able to see the whole of The Shape of Water without leaving for a break which is something I did for a while but stopped being able to do. However I've also had to go in the middle of a tv show. I had severe Hunner lesions when I had my Cystoscopy 2 years ago, and my doctor explained recently they may never fully heal and I believe that has a lot to do with the blood. It's why she and I both believe bladder distention would be more harmful to me than helpful. We were going to use the instillations that included heparin but the compounding pharmacy she contacted to order it said they no longer use that formulation and it's now replaced by Hyaluronic acid. Also I've had two completely unexplained incidents of my urine being full of blood with no infection or any sign of a bladder stone. They were a year apart but I've had a hard time getting back to a better more stable place since those happened. I am going to still try the instillation of the Lidocaine and Hyaluronic Acid. If that also causes a lot of blood and pain for later that day I will decide from there whether it was worth it. I wonder if using the Elmiron and it being a minor blood thinner had something to do with it as well. Thank you for pointing out that there are other posts about the Hyaluronic Acid instillations. I had assumed it was very new since this was the first time my doctor seemed to be made aware of it.

        Comment


        • #5
          Welp, I have posted about some of this in other parts of the forum but the doctor that did the rescue instillation ended up suddenly leaving and I've had to find a new Urologist. She had just gotten the ability to order Heparin for me at the pharmacy in Feburary. I am supposed to see someone tomorrow to both set up my treatment plan and I think get the first Heparin instillation. I didn't realize it because I was still in pain this morning and took pain medication and slept til the afternoon but the doctor that I saw yesterday that did the in office cystoscopy had my appointment set up for tomorrow with his partner in a different facility. They apparently called and left a message that just said they were calling about the appointment. I found the message about an hour ago. The appointment is at 9 so hopefully their office is open by 8 so i can at least get a call in to make sure they weren't cancelling it.

          I wasn't ever able to get any instills with Hyaluronic Acid. The pharmacy that would have sent me the kit was expensive and insurance does not cover the process because they said it's being used off label. At least that is what they said about the heparin. But 3 vials was like $54 so that seemed worth a try.

          I'll post more after I see how tomorrow goes. Thank you for being so responsive to my questions. In some ways while I've had this condition a long time and been in treatment for several years there is always so much more I feel like I have no idea about.

          Be well and safe.

          Comment


          • #6
            Well crap on a cracker....The new Urologist I saw sent me to see his partner that treats IC specifically. He can still see me for office visits, urine specimins but Dr. Shalata is who is going to handle my treatment plan. She said she will not do a bladder instill because she has never seen it help any patient ever in 10 years and she feels it leaves people in more pain due to irritation as well as more infections. And she saw that i'd had a urine culture done which did not show anything but she initially mentioned she will be doing a special urine culture to look at it I think she worded it as at the molecular level? I think several other posts have talked about some of the doctors doing a more specialized order on the urine tests and that sometimes finds things that are difficult. However, the new doctor will not prescribe any Valium orally she will only do suppositories which are not covered by my insurance. She also did confirm she can continue my use of medical marijuana, but she will not prescribe any Percocet or even Tramadol. She said I would need to see pain management or get another doctor I see for my other conditions to write prescriptions for the oral Valium and anything like Tramadol. i understand doctor's not wanting patients to be addicted, and I do agree that the suppositories (when they stay in) do target the pelvic area much better, but when I have other conditions that Valium does also help like Fibromyalgia and Sciatica that will take away from that treatment. She also is suggesting I take Myrbetric on top of the Detrol i already am taking. I tried Myrbetric before I even had the first cystoscopy and did not fine it was useful. But she says many patients find it works when you take them together to reduce the urgency and frequency. She also suggested taking hydroxyzine may be a good addition. i was advised not to add it because I already take an antihistamine. But for now she wants to just add one medication at a time to see if something clicks specifically rather than adding everything at once she was suggesting. She discussed Botox which I've always thought was just a scary option but she made a point to restate it later that i haven't tried it yet so i suspect she will push that option if the other options have not worked. So I kind of feel torn now. She said she does know my prior doctor and that she has not started anywhere else yet. So I at least know that much now. I like that she wants to try something different with combining two medications for frequency....that hadn't occurred to me. Actually, I had been told by my prior doctor that she never gave Myrbetriq to her patients despite that her colleague did before he transferred me to her. But he was not an IC specialist. And my doctor had agreed to give me the Detrol because i had it years ago when I had initial symptoms and I felt then it helped. And when I did try to stop taking it I did get worse. So I guess I will need to confirm if my Arthritis/Fibromyalgia doctor will take over the oral valium or if I have to see a different office for that through pain management. The better thing was that I was able to do the visit with her as a telemedicine through zoom so I did not have to leave the house so early. That was also a plus. That's all for now folks.

            Comment


            • #7
              It sounds like you have found a good doctor. One thing I know from my years of working at a major hospital is that only pain specialists are allowed to prescribe full time pain control that involves certain medications. For your arthritis/fibro, it could well be that you would be better off seeing a pain specialist.

              Let me know how you are doing. The world is a tough place right now with the Covid-19 pandemic -- are you able to get groceries, etc. to get by?

              Sending gentle hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                I agree. It does sounds like you have found a doctor who keeps up on current treatments. I have used home rescue installations for 15 years. I did need them several times a week for a number of years but rarely need them now. The meds are good for 2 years and I actually have to dispose of the heparin/ lidocaine because they will go out of date. Instillations are the only treatment I have ever used and have successfully managed my IC. My instillations are just the basic recipe with heparin and lidocaine. I am on medicare so supplies are not covered. 10 treatment with meds and supplies runs about $100- $150
                Last edited by L. Thomas; 04-30-2020, 07:40 AM.
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

                Comment


                • #9
                  Originally posted by L. Thomas View Post
                  I agree. It does sounds like you have found a doctor who keeps up on current treatments. I have used home rescue installations for 15 years. I did need them several times a week for a number of years but rarely need them now. The meds are good for 2 years and I actually have to dispose of the heparin/ lidocaine because they will go out of date. Instillations are the only treatment I have ever used and have successfully managed my IC. My instillations are just the basic recipe with heparin and lidocaine. I am on medicare so supplies are not covered. 10 treatment with meds and supplies runs about $100- $150
                  I'm so glad you are doing well. Thank you for responding.


                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Hi
                    I have a question about bladder instills. I have been dealing with the same urologist for several years and feel she knows a lot about IC. A few years back I had a bad bladder infection and I had a rescue instill done at the hospital. Although it helped me for a while, I had a severe and one of the worst flares that latest around two weeks from this procedure. I have mild pain from sitting and am using noretriptyline-a low dosage. When I was speaking to my urologist today she left me know that I can always do instills as an option but quite frankly I am afraid to and feel like I am managing pretty well overall. I can't help thinking though this far into the whole IC journey why was I never given medication for frequency? Your bladder is a muscle and if it is overused it gets sore-to me it seems like common sense...anyways I have been prescribed Mybetriq and am wondering if any other people have had good experiences with this medication. Also is the main purpose of a bladder instillation to help with pain or frequency or both? It has never been explained to me. All I know is I have been through so many procedures at this point I only will do them if absolutely necessary. Thanks
                    Katrina

                    Comment


                    • #11
                      When Dr. Dell explained IC to me he said my bladder sort of lost its rhythm. Instead of contracting it quivered. Using the instillation let the bladder relax and regain the normal rhythm. My presenting symptoms did not include pain. It was a rather uncommon symptom of what I called the "walking farts". He diagnosed IC at the first visit and I began instillation treatments. A few weeks later IC was confirmed with a cystoscopy. Pain has never really been an issue for me so I really can't address the way instillations help with pain but they did reduce my frequency from 15-20 times a day to 8-10. I have never used anything except bladder instillations. Dr. Dell has always said this is a disease that could be successfully managed but does not have a cure.
                      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                      I post to encourage and offer total support for rescue instillations.
                      Find me on facebook: L. Clark Thomas
                      Louann

                      Comment


                      • #12
                        Hello
                        Recent update and frustrated with the medication route. I don't like being on so many medications, Elmirion, Effexor, Lo-lo(for endo) and Noretriptyline for pain. Recently I started Mybetriq partly due to the frustration of no public toilets being available during Covid….I have been on this medication for a month and have noticed small changes in frequency but nothing too major-apparently there is an interaction between Noretriptyline and Mybetriq, I speak to my urologist and am on a low dosage of Mybetriq which apparently can take up to 8 weeks to be effective-I am on week 5 and side effects have not been pleasant-likely due to medication interactions. I am wondering can anyone recommend or suggestion a good medication for pain with minimal side effects? I will probably try to get off the Noretriptyline or find a different med for frequency. Trying to make a decision about instills too and wonder if I should try it to see if it would be help me with frequency-but am scared as I had a severe flare the first time. I am really needing some support today. Thank you
                        Katrina

                        Comment


                        • #13
                          Firstly I want to apologize to you Donna for leaving your questions unanswered. My family has been healthy and we order groceries to be delivered and order take out when it's just what is needed. Everyone is stressed and a relative of our combined family works at the NHS and is assumed that he had Covid as he got the symptoms of cough and fever and such but when the UK was also not handling it well and so I do not think he was able to get any actual test to fully confirm it. But he did recover in as much as it seems people can. I don't try to stay up to date with all the things that are just overwhelmingly wrong these days for my own mental health but I have read that many patients report after their recovery they have continuing effects from the virus. And many doctors just outright stating the obvious that we are so ignorant of this virus that we do not know how it is affecting the development of children even if they have a mild case, or if it is going to have permanent damage to everyone. I fully accept I am ignorant of it, and because I know that I don't know what I don't know about Covid (and no one does) then every precaution to avoid getting it is the best plan.

                          Unfortunately there is an ex wife involved that feels this is damaging to the two teenager's mental health (they've already been in therapy for years due to Autism and ADHD/Anxiety as well as trauma issues she both exposed them to and inflicted on them) and that a doctor has told her we all need to face we will get this. And she has been working as a Vet Nurse the whole time even working overtime. She left the kids here for a bit more than two months before getting insistent she should take them. There are some websites their father follows that shows trends about the virus so if there is an increase in new cases being reported indicating a spike is about to happen he will insist they stay here instead of going to be with her and her mother. She's a constant source of stress and anxiety. She causes anxiety in her son but she has brainwashed him into believing he owes her something because she's his mom. At this point though she was his in utero landlady slumlord and she won't stop talking about how horrible her pregnancy and giving birth to him is and he's 16 now. But she also lacks any consistency or boundaries so he sees being with her as freedom because we put boundaries like a sensible bedtime and we limited screen time for a lot of years. But at this point all of his schoolwork and friend contact is still done using his computer or phone so we can't really assert that will be helpful or effective. It will more than likely make him give up and/or try to sneak around rules which he gets caught because he's not defiant or as slick as he'd like to think he is.

                          Either way aside from whatever the risk is that comes from her we have managed to avoid everything but doctor's appointments. Our concern is that she agrees to keep the kids at her mother's home with her where she lives when they are there, but otherwise she has worked at many different locations of Banfield Animal Hospital as well as started dating. She was widowed by a fellow recovering addict a little more than a year ago and she met someone in December. I don't think she owes her husband anything when he made the choices to not get mental health help and self medicate instead and died in bed next to her. I can't stand her but I cannot even avoid being empathetic about that situation. And I don't really feel a need to criticize her choices for her relationships until we were still in lock down and suddenly she was seeing someone different. And then back to who she met in December and saying "someone wants to take me on a trip so I need to know now whether the kids are coming" If they were coming she wanted to know if she could take them to a bridal shower. Both she and her mom would be going. She then threw out that a coworker's sister that lives with her ended up getting exposed to the virus while her coworker was not at home but was getting tested as well. So it seemed like she was giving lots of reasons to not send them and she agreed only to get back from her trip attend the bridal shower and then insist she could and should pick up her son for nearly a week. And doing so with no warning that she was going to want to arrange for time after the events she wanted to go to were over. And it's questionable if her coworker story was true or the results were negative as she reported within two days when currently it is taking over a week for results to come back.

                          I was able to see the new doctor in person recently, and I had decided that I will seek pain management because while I qualify for Medical Marijuana it's very costly to need to use it for pain full time. Especially since I can only use tinctures (or topical cream which I have not tried yet). And while I agree the diazepam suppositories are very effective for the area where most of my pain comes from, since I have Fibro issues with pressure points in my hips and lower back as well as Sciatica and likely Bursitis in my hips because I became much more overweight than I have ever been in my life. And that was due to Amitryptline and Nortriptline being both part of my medicines and Duloxotine. All three are antidepressants used for nerve pain for IC and Fibromyalgia. I spent so much time with no energy, sleepy all the time and exhausted at the same time no matter how much sleep I was getting. I finally came to the conclusion I could not exercise because every time I tried even small options my ankle or knee which have been injured at different points would become aggravated again simply because they were not able to handle my weight. So I asked to be placed on Wellbutrin instead because it is also used for nerve pain. But I had to ask for that to be prescribed from my primary physician because my initial Urologist said she was not comfortable using it...not that it was a bad option just that she doesn't have experience with it. But I had only used the diazepam suppositories about 3 times because of the difficulty of application. It honesty just made a really big mess. I was offered Percocet at the 5mg level from my initial Urologist for the more severe pain and then at later times when I asked for another script she became less willing. Then Tramadol was suggested and I was fine with that but it does not work as well as Percocet. And I always refused the 5mg dose and demanded the script be written for the 2.5 mg. I do have addiction in my extended family. but I also have faced some of the worst emotional moments and was thinking I need a drink and immediately recognized that was where addiction starts. I've only ever had alcohol for special ocassions aside from I think twice that I bought some wine coolers to drink through a few different week periods. I am very introspective and stubborn as well. I trust even if a pain management specialist agreed my pain was excessive enough to allow me to keep oral diazepam and percocet at the lower dose and renew my Med Mar with them, I would be more likely to take any of the medications they allowed less often than they write the scripts for and I have no problem checking in regularly with them.

                          I did not mean to leave you hanging without confirming we are ok. Just things were very intense.

                          We are however preparing to take in my daughter's fiance, who is a trans person using they/them pronouns. They currently live in a rural area 3 hours away and works in a grocery store's deli. Their mother has unfortunately manipulated and emotionally/mentally/verbally abused them for their whole life. But their home became unsafe. The floors collapsed in the kitchen then in the livingroom so they went to a hotel with their pets. Their mom works part time at the same grocery store but their older sister is left with no responsibility or expectation of contributing even when effectively they are all homeless. So before the hotel living becomes unaffordable we are going to take them in. And they are going to have a test for Covid before coming. There is just no way any of the 4 adults living here can see a reason not to make sure they are safe. And while here they can heal and be supported emotionally and know they are loved and appreciated and accepted.

                          I also started Hydroxyzine recently. And I take it at night with Neurontin yet I cannot seem to sleep at night. I eventually get tired and doze off at like 10 am even if I take those meds at 10 pm. I have already spoken to my ENT about getting a sleep study and my allergy/asthma doctor that I feel there is something going on. Before getting treatment at all. I could sleep 3 hours before needing to get up and go to the bathroom at night and sometimes 4 or more if I'd become very exhausted. That only happened once recently and even if I stay up more than 24 hours to sleep at a decent time one night I end up being wide awake in the middle of that night and then tired again by midday. I have always been naturally a night owl. But before Covid I at least had a routine for what I needed and for what I felt I should contribute to the household. Once Covid happened I just could not seem to stay on track. I do obviously feel scared of Covid, both for myself and the other members of my family...one of which has a lung disorder but I'm not sitting up with racing thoughts about that. But if I do decide to try to nap I can't sleep more than an hour at a time and when I get up to go pee I am so groggy I also cannot manage to be awake enough to function.

                          So hopefully the new things the new Urologist wants to keep trying will help with my symptoms and be able to allow me to reclaim more time away from my bladder. And with a pain specialist that could work towards that as well. I had wished she would have at least allowed me to try the Heparin instill but she is adamant about both that and anything that can cause any addiction issue. An important thing to add is that Tylenol stopped being effective for me for pain relief well before it's safety came into question so even being offered tylenol with codeine was unhelpful but all one doctor would prescribe after a day surgery. I took a lot of Nsaid's and I have gastritis in my stomach not caused by an infection. So either that was due to the Nsaid's or my body is attacking my stomach lining, just like my bladder lining and my thyroid is being attacked.

                          Lastly I need to go back to the information about the right kind of eye exams to make sure to get so I know if Elmiron is causing me an issue. It's difficult because I never needed glasses at all until I hit the normal age that reading glasses usually are needed and then boom they said I also needed a slight correction in distance as well as astigmatism (well the astigmatism was not mentioned to me verbally the first visit but they swear i was told) But the initial glasses I got stopped being effective which is what sent me to get a new pair. And then wearing them didn't seem to help. So I read the issues with Elmiron and got a little freaked out and had no Urologist yet, but I eventually found that my sight is better for longer without either pair of glasses and then eventually my eyes get tired. Then things are blurry. But with the glasses I was having double vision in an overlapped fashion. I can only guess they were made incorrectly but since I was worried about it being Elmiron I ran out of time to take them back and insist they were wrong. My only concern at this point other than just ruling it out....is that I am told astigmatism is either something you have basically lifelong or it can happen due to injury and I have not had anything I think that would have caused any injury to my eyes. I can only guess that because I could read the eye chart no one ever went further to screen for the astigmatism when I did have eye exams in the past. In fact the one I had prior to ever needing glasses was annoyed at me for coming without symptoms. I know eye exams are supposed tp be done just to make sure...not to explain symptoms. And of course those eye exams can identify other health conditions.

                          So to everyone else that is struggling with what to do about their IC symptoms.....I haven't been able to get to a stable plateau. If I could do a 2 hour car ride (but I feel like the symptoms are worse in a vehicle) or at the least see a normal length movie at the theater when that becomes safe again I will definitely celebrate that as a victory. but nearly all my difficulties are involving pain...I have frequency but it's both painful to be put in a position to have to hold it as well as painful to go. I cannot sleep on my side because of my hips. I get a back ache easily from slight housework.

                          My biggest success right now is that after having lost 40 lbs then having hand surgery....and added the amitryptiline/nortriptiline and duloxitine I just kept gaining and gaining and gaining the weight til I gained 80 lbs. But using Wellbutrin has definitely helped. Hopefully I can keep going down and get the eye issue checked into and set up with pain management and that will at least relive some things for me.

                          I hope everyone is well and I hope I can be more active here rather than being so wrapped up in other annoyances of life.

                          Thank you all for support and listening.

                          Comment


                          • #14
                            I hope things get better for you soon.

                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment

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