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IMPORTANT:Regarding alternative therapies

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  • #1

    IMPORTANT:Regarding alternative therapies

    WAAAY back when I was first dx'd with this (in Sept) I was frantically searching for "cure". Another chat /message board kept recommending these vitamins that had a mixture of stuff in it especially for IC folks. One of the ingredients was Oregon Grape which is a natural antibiotic. I am so allergic to almost all antibiotics. I took this stuff and got so sick. Please, for everyone...Be very careful when you get anything that is a mixture of herbs/vitamins unless the person who put that mixture together for you is trained in naturapathic medicine, chinese medicine...whatever. One size doesn't fit all when we take these blends.

    Take care.
    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs




    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein
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    • #2
      Oregon grapes are extremely acidic --- we have them growing on our property and I make jelly with them. I have to be very careful that I don't get too much pectin in them because of the acid. And I don't eat the jelly, but my family loves it.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          Ah Donna, I luv ya...You can take lemons and make lemonade out of anything. Besides, you like the Ducks, so you gotta be a good person!

          Tracey

          (However, I won't be sampling those wares...it would make very sick!)
          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

          Medications I CURRENTLY take:
          90 mgs Ms contin (45 mgs Am/PM)
          Percocet as needed
          Topomax 100mg day
          Ambien 10 mg bed
          desipramine 25 mgs




          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
          Albert Einstein

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