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Aloe works great
Have just started on Aloe. I am taking a whole leaf juice concentrate. Tastes yucky, but after 3 days I already notice a big difference. I have ordered the desert harvest pills, and hope they work as well, but it is really exciting to think that I have found something available at my local whole foods market that can relieve that HORRIBLE burning sensation. I am also on elmiron and plan to take both for a while, maybe forever. If you have't tried Aloe its worth a shot, particularly if you are an elmiron resonder. Good luck to all.
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I heard good things about aloe lately, but I haven't tried myself (yet). Maybe it is time....Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
UTIs since mid 2004
Recurrent yeast infections since mid 2005
IC dx 3/2006
V V dx 12/2006
Other conditions: IBS, allergies, dry eyes.
Current IC medications:
Elavil (since 12/06) 10 mg;
Cysta Q (since 5/07)
Rephresh acid jel every 3 days
D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
Probiotics Femdophilus or other brands
Gy-Na-Tren for yeast infections (started using it as needed since 2010)
Other Rx:Omeprazole 20mg; benadryl as needed, Restasis
Past Meds and why I stopped them:
Elmiron: March to September 2006: headaches
Lyrica:2 weeks in 2006: headaches
Cystoprotek: from Jan to April 2007: nausea
Femcon Fe (2/07 to 10/07):caused spotting/bleeding
BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.
"Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"
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I am one that responded to Aloe Vera too...and like you found it soothing right away which is why I was more willing to give it the full time to see if there were long term bennefits too which I think there were!
:woohoo: So glad you found something that helped you!!!
I believe it has a higher likelihood of helping than Elmiron.Faith, Hope, and Love,
Katrina
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!
IC
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HI! I'm a firm believer in freeze dried Aloe Vera. I've been taking it for over 2 yrs and it's always worked great for me. Once I ran out for several days and I could tell I hadn't taken any cause my bladder started getting painful. Since then......I always make sure I order before I run out! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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