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Think I've got it figured out!
I started taking CystaQ and aloe vera capsules several months ago. I noticed significant improvement in how the inside of my bladder felt. I had been on elmiron for over two years at that point, without much improvement. So, on my doctor's advice, I titrated off the elmiron to see how I would do.
BAD idea! I started to have that awful, inside the bladder pain that I don't know how to describe. I wanted rescue instills all the time. So, I added the elmiron back in, and now the inside of my bladder feels ok again. So I guess the elmiron was doing something, but not enough. Working together, the three seem to give me a good 'coating' of the bladder wall.
Well, it took some time to figure that out, and I'm not saying I'll never be running for the rescue instills again. Or throwing out my percocet just yet. But I do think I'm on to something, a combination that works for me. It's not cheap; my insurance only gives me partial coverage on the elmiron, and obviously no coverae on the herbals, but we can swing it and so it's worth it to lose that horrible raw feeling inside the bladder.
These are not my only meds, but this seems to be the best cocktail for the bladder lining itself. Yay! It can be a long, tedious and painful process, but in the end it is worth some experimentation. You never know, you might get a great result like I have.
BAD idea! I started to have that awful, inside the bladder pain that I don't know how to describe. I wanted rescue instills all the time. So, I added the elmiron back in, and now the inside of my bladder feels ok again. So I guess the elmiron was doing something, but not enough. Working together, the three seem to give me a good 'coating' of the bladder wall.
Well, it took some time to figure that out, and I'm not saying I'll never be running for the rescue instills again. Or throwing out my percocet just yet. But I do think I'm on to something, a combination that works for me. It's not cheap; my insurance only gives me partial coverage on the elmiron, and obviously no coverae on the herbals, but we can swing it and so it's worth it to lose that horrible raw feeling inside the bladder.
These are not my only meds, but this seems to be the best cocktail for the bladder lining itself. Yay! It can be a long, tedious and painful process, but in the end it is worth some experimentation. You never know, you might get a great result like I have.
On the Beach with IC 
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