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  • #1

    Quercetin by itself?

    Not sure if this is the right place to post this, but has anyone tried just taking quercetin by itself, as opposed to talking CystaQ or Cystaprotek? I have no problems with them, but since I went off of Elmiron I'm looking for something that does about the same thing.

    Also-quercetin supplements alone are a lot cheaper, so I'm wondering if they would be worth trying as I could probably go down to Whole Foods an pick some up today.

    Thanks for all answers in advance gals.

    Kitty!

    Just diagnosed w/PFD - Oh Boy!

    What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

    What I'm presently on:
    Noritriptyline 25 mg
    OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
    Zanaflex 2 mg at bedtime
    Percocet PRN for breakthrough
    Zyrtec
    Nasonex (allergies)
    Jolessa (b.c.)
    Physical Therapy 2x weekly

    Be my buddy?

    http://www.facebook.com/home.php?#/p...88&ref=profile
    Tags: None
    • #2
      Hi Kitty,

      I take a few supplements, including the quercetin, but have not really noticed any change in my symptoms. My uro actually recommended the quercetin and the glucosamine by themselves, with rutin....

      Good luck - always check with your docs before taking any supplement!

      Hugs,
      Beth
      IC diagnosis 1999
      Meds: Elmiron
      hydroxyzine hcl
      DMSO as needed
      valium as needed
      librax 3x day

      TENS therapy



      Thanks to all on the boards - YOU have helped more than I can say!


      A person's true wealth is the good he or she does in the world.

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        • #3
          Trying alternative meds, but not sure

          Hi,

          I'm recently diagnosed, and met with a naturopathic doctor/nutritionist, and talked with some local folks.

          I've always known I am hypersensitive to meds, and I think the same is true with the natural ones, though I didn't think it would be.

          I started out trying glucosamine/Chondroitin, then added Quercetin, but didn't feel so great, so I backed off of the Quercetin. Last night I added Pumpkin Seed Oil and Marshmallow Root, but I was really sick (as in if I had food poisoning) early this morning. It was not pretty!

          It's a bit hard to tell, as my doctor has also had me on more OTC pain medication than I've ever taken. And I took all of that last night too. It was hard to be so sick as the night before last I had a pretty good night re pain. But I was in pain by last night, so I went ahead to take the herbs and the pain medication.

          I really want the diet and herbs to work, though I'm waiting for a hard copy of my Rx for Elmiron too . . . but for me, I think it's just better to go slowly. I may actually try to empty some out of the natural capsules part way , to start even more slowly, though that's a waste, as they're expensive too!

          I welcome suggestions from anyone about what herbs/supplements have worked best and did you have reactions to any of them?
          Waves
          Diagnosed 6/4/07, also IBS, migraines, allergies,
          hysterectomy, previous fibroids, cysts.

          Help measures in process -- hope to start PT, etc. Main pain meds: HEAT, Tylenol, Alleve, Working on diet!

          Cold infusion of Marshmallow Root tea 2x day, Citrus free Quercetin 2x day

          I am not my illness -- it's just a facet, I aim to enjoy life and pursue my dreams! I hope it makes me a more compassionate human being.

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            • #4
              Waves, Beth, Rivet,

              I'm glad you found a Doctor who meets your needs. Maybe all of you will start to get some IC relief soon.

              Well Wishes,

              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                • #5
                  Kitty,

                  I've been researching Cysta-Q, and they believe the other ingredients in the Cysta-Q (such as the bromelain and papain) help the quercetin absorb into the body more efficiently. Now, I'm not taking it... but I'm thinking about trying Cysta-Q because I NEED SOME RELIEF!
                  [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                  [

                    Comment

                    • #6
                      Waves,
                      You need to go slower. When I start a med or supplement I do it one at a time and give it about 2 weeks to see if I have a reaction to it.

                      When I started on the supplements it took about a month before I noticed a difference.

                      Ginny

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